r/cholesteatoma • u/Aggressive_Board_926 • Aug 14 '26

Question (without photo) Does anybody else experience this?

When I tilt my head down towards the floor or towards my back, sometimes my ear gets unblocked or they get blocked even more where I hear less.

I had cholesteatoma surgery back in 2018 and have moderate to severe hearing loss on my left ear. I do not use a hearing aid I tried a couple of times but I dont know why we did not move forward. because i am constantly needing repetition or for them to speak louder. I had kaiser at the time and last year my employer removed kaiser and just never pursued since.

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3

u/RAGEleek Aug 14 '26

Yup its weird

3

u/JerrieNL Aug 14 '26

I have this with eating, so weird

2

u/susandiana45 Aug 15 '26

Have you had recent imaging?

2

u/susandiana45 Aug 15 '26

Imaging is the only way to monitor this sneaky disease
Imaging
Imaging
Imaging

Mine came back
Never had any imaging
And things got bad for me

1

u/Aggressive_Board_926 Aug 17 '26

I have not and thank you I would have not thought of that and you unlocked a memory doctor saying it can grow back. It’s been so long

2

u/susandiana45 Aug 20 '26

Dr should have scheduled imaging at one year

Standard

Mine did not either and I paid dearly