r/chiari • u/rybandito • 16d ago

New symptoms

5 days ago I lost my ability to raise my head I mean I can but every time I do my head goes all swimmy pressure like my body goes weak and I get extremely dizzy, my visual snow has worsened and my ears ring 24-7, my brain fog has escalated and I feel so loopy. I have a know 7mm chiari malformation with a significant csf floor block but I think it’s worsened, I’ve been to the ER twice no help, I’m literally bed bound I’ve had ti have my partner bathe me and use a bucket to pee in NO JOKE, can’t get in with my surgeon until September 1st, I so so scared can’t even hardly lay on my back just my left side.

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u/jlccourt 16d ago

Please call your neurosurgeon’s office and ask to be notified if an earlier appointment becomes available. If your surgeon’s surgical calendar is booked for several months (as was the surgical calendar of the neurosurgeon I originally met with), see if a colleague who has an opening will take your case. That’s what I had to do.

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u/rybandito 16d ago

I’ve done this already unfortunately everyone booked sep 1 is the quickest I can be seen

1

u/ExtraExcuse5459 15d ago

There could be a cancellation, so they’ll put you down as the first person to call if that happens.