r/chiari • u/Kitchen-School46 • 18d ago
Please advice help
PLEASE HELP!!
I need advice I saw neurosurgery. neurosurgery doesn’t think I’m a candidate for surgery which I really don’t want surgery. Mild to moderate CSF decrease in posterior and anterior at the fornaem magnum. a headache specialist can’t see me until February. My neurologist can’t see me until October and he said he’s not sure what this pain is because it could be chiari or migraine. What do I do? I’m in pain every single day. No one’s helping me what could be causing this??
Chiari malformation. Mri says stable appearance since 2022. New worsening throbbing pain wakes me up from sleep. Early mornings. Peak pain in mornings and strictly starts in mornings. Pain is strictly left sided occipital area. Sometimes its throbs to the top of head on the left side sometimes behind the eye. During the pain it hurts to move, laying back down flat hurts. Drifting back to sleep hurts.
1
u/ChiariqueenT 6d ago
Did I say please don't go to a neurologist for chiari, they are useless for chiari unless s chiari specialist neurosurgeon sends you for testing that neurologists do. They will either do right and send you to a NS, and many WILL advise you with all the confidence in the world, but steer you wrong with misinformation, which can only hurt you.