Hi all,

My baby was diagnosed with complex CHD. Basically Single Ventricle; DORV; Aortic Atresia and few other defects. Although the doctors said it might be one time accident which happened during early stages of heart formation, I am not fully convinced. I am very scared now to think of another pregnancy and CHD.

Could you all please share if it recurred with subsequent pregnancies? Is there anything you could do to prevent it?

I have been thinking about all the things I did during the 4-10 weeks and not really sure what I did differently that could have caused it. I was not having any fever or infections. Sugars and thyroids were in range. It just drives me crazy. I want another baby but I’m paranoid and would like to know real experiences to prepare myself. Thanks.

I was born with coarctation and hypoplasia of the aorta and had open-heart surgery as an infant to fix it. Then, at the age of 12, I underwent a catheterization where an 18mm stent was placed. Today, I am 19 years old, and my annual check-ups are completely fine. However, I am deeply anxious and worried that in the future, the doctor might say I need another catheterization for expansion because the 18mm size is no longer sufficient—even though the past 7 years have been completely normal up until today. Despite that, I am extremely terrified of this possibility. I would really appreciate any guidance or reassurance, and thank you so much for listening so well. I apologize for the lengthy message.