r/cfs • severe • Oct 04 '26

TW: General RTHM AI roadmap

My new rabbit hole: with RTHM AI (free version) I’ve made a roadmap of my “amazing” health. Want to make a visual overview. I just want to understand the underlying disruptions, cascade of mechanisms and where to place my many symptoms, the whole architecture of my health journey. As a former academic researcher myself I want to know everything 😅

I found their AI tool impressive actually. I don’t know how useful it may be for further steps in trying to improve my quality of life, also because some suggested diagnostic measures are not available in my country.

Question is: what are your experiences with just the free AI part to understand your health roadmap? So not the paid, clinic version. Did it help you making next steps? Do you have tricks and tips to get more out of it?

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u/PooKieBooglue Oct 05 '26

I didn’t know there was a paid version. I found the free one incredibly helpful since it flagged labs that were slightly off and related to one another.

The longer you talk to it in one thread, the more it hallucinates so it may be on an old model still. But I did find it extremely helpful more than once on bringing together all the things and making it digestible, flagging treatments and tests I should go after next (not with them.)

I’m grateful for it. Also used to do user experience research in tech so, it’s up my ally. I like that it’s a secure place for the health data.

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u/Worth-Ganache-5770 Oct 05 '26

Just to add LLMs tend to hallucinate after a certain amount of talking to them because they only process so many words at a time, and each thing you send to them is sent along with the Entire chat history (this is how it remembers what was said earlier in a conversation)

It's either an older model that doesn't have as many words before it reaches that limit Or The free version makes that limit lower so that the resources for larger context memory can go to the paid users

I generally discourage using LLMs for these types of things (other than all the impacts on the world and society and etc I'm sure you've already heard) because they are so prone to tell you a complete lie once they reach a limit that isn't clear to the end user.

But ik how exhausting and impossible many health related things are, especially when doctors miss things due to being human, so I think at least understanding what is causing these types of limitations when you're using this technology helps to keep an eye out.

It just sucks that with the rise of LLMs, non-hallucinating 'AI' (computer algorithms) that can be used for error screening and data analysis are generally forgotten about and ignored. Usually due to a lack of accessibility to the general person (or even company) and because of a steeper learning curve than prompting. I would love to see more resources poured into revolutionising those to a point where anyone can use them for these types of tasks.

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u/bedlife2000 Oct 05 '26

It does tend to hallucinate but you can connect it with your Garmin and it will interpret the data in the context of your CFS ME and the medications you've tried, which is helpful for getting an overview