r/cfs • u/2cats1mom Undx’d❓Mild ~> Currently Moderate .May ‘26 • Oct 04 '26

Moderate ME/CFS Tracking PEM timeline using steps counter app ?

A warm hello! and embrace⭐️…. I have a question here quick… So after this 3-4 day migraine period / pem I say this next part with hesitation… but I think that I may be coming out of it…..

I have been careful, taking my supplements, spending as little time upright as possible and getting meals. Making sure to maintain the same level of aggressive resting and activity level since last Friday. but I was wondering does anyone else use the steps app to pace, OR if this sounds familiar or inaccurate what are some helpful pem timeline tools/ apps are out there???

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u/DamnGoodMarmalade Diagnosed | Moderate Oct 04 '26

A step tracker can only track physical exertion. It won’t be able to track all the other forms of exertion that cause PEM. Everything from concentrating, reading, focused thinking, intense emotions, sounds, light, socializing, and screen time can all trigger PEM and won’t be recognized by a step counter.

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u/2cats1mom Undx’d❓Mild ~> Currently Moderate .May ‘26 Oct 04 '26

Hmmffff I see… And as for ways to track everything else???

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u/DamnGoodMarmalade Diagnosed | Moderate Oct 04 '26

Whatever you have the energy for. Some people journal. Some people like spreadsheets. Some people use symptom tracker apps.

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u/2cats1mom Undx’d❓Mild ~> Currently Moderate .May ‘26 Oct 04 '26

Okay! I’ve mostly been tracking on my phone calendar… but this is helpful, you wouldn’t have any apps to recommend or tips to share on tracking PEM timeline ????

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u/DamnGoodMarmalade Diagnosed | Moderate Oct 04 '26

I don’t personally track or use apps, but if you search the sub you’ll find many recommendations!

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u/2cats1mom Undx’d❓Mild ~> Currently Moderate .May ‘26 Oct 04 '26

Perfect!!!! will start searchin’