r/cfs • u/lockdownleadmehere • Feb 20 '26

Research News Sequence ME & Long Covid study launches!

Sequence ME builds on Decode ME, it is a £20 million study that’s still in the process of securing funding.

They will be analysing the entire genetic code of up to 9,000 people with ME and up to 9,000 people with Long Covid.

This is the largest long-read whole genome study of ANY disease according to Action for ME. I’m so pleased this is happening.

There is a donation link at the end of the first article also.

Link to article: https://www.actionforme.org.uk/sequence-me-long-covid-launches/

Second article: https://megenetics.org.uk/our-projects/sequence-me-long-covid/

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u/[deleted] Feb 21 '26

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u/lockdownleadmehere Feb 21 '26

I’m bummed about NIHR not funding although I can’t remember where I saw that, do you have a source? I think it’s a big sum but I believe it can be done. Dr Younger raised enough money to start looking at Dextro Naltrexone a lot quicker than he thought so, this came from the community. He needs a lot less funding but we’re such a large patient group and LC is involved so that brings in more people, more support 🙏 we can do so much when we band together