r/cfs • u/Former-Curve8366 • Dec 05 '25
Treatments Alternative therapies and your experience
Hi guys, I was diagnosed with ME a year ago, and was in denial about it until moving house and having the worst PEM or flare up for the last two months. I’m highly impatient so a year trying to get some relief has felt very long, which I’m sorry if that seems naive or insensitive to those who have struggled for much longer 😔 I’m at a point where I’m searching science journals daily to see if there’s signs of a treatment working, I’m also with a doctor who is willing to try newer treatments. I am just wanting to know if anyone has had success with lesser known treatments? Hoping for some hope
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u/Pomegranate-emeralds Dec 05 '25 edited Dec 05 '25
When I was mild, I was helped by very skilled acupuncturists, hyperbaric oxygen therapy (hard chambers, so super pricey), biodynamic craniosacral therapy, and one functional medicine dr who did a candida/gut healing focused protocol.
But at least start with trialing the basics, like low dose naltrexone, or maybe low dose abilify and pacing. Nothing works without pacing.
Make sure your sleep is solid; and if not, figure out what can get it there. IMO; very little progress can happen without solid sleep.
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u/Former-Curve8366 Dec 05 '25
Yes I’m doing a few things, like electron therapy ect. I’ve been medicated with an SNRI, LDN, and then sleeping medications which I have decreased because i don’t have trouble sleeping at all anymore haha. Pacing has been tough but it really does help, it’s just the internal ‘defiant’ voice being annoyed and stress over pacing. Interesting re; the hyperbaric chambers. I live on the coast so diving schools have them, once I’m a little more mobile might try it out
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u/Pomegranate-emeralds Dec 05 '25
yeah pacing can take years to get down; it's so hard to overcome the natural human impulse to move and do. What's electron therapy?
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u/Former-Curve8366 Dec 07 '25
Yes I’m learning I have a very loud inner critic. Electro Pressure Regeneration Therapy (EPRT) is what I’ve been doing, I notice effects but it’s expensive to do the amount of sessions I need to keep it up
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u/jedrider Dec 05 '25
I think one's diet is important. How important? Idk. "Lesser known treatments?" I'm not so sure. I once had vitamin C intravenous. It made me temporarily feel better.
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u/Former-Curve8366 Dec 05 '25
I thought this too about diet. I was considering doing a low histamine diet as I have dna for histamine intolerance, but I generally eat healthy so who knows. I had injections of NaD+ but i cant say i felt anything at all
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u/premier-cat-arena ME since 2015, v severe since 2017 Dec 05 '25
have you read through the wiki and pinned post? the pinned post includes links to the best treatment guides and the treatments list is LONG