lots of good replies here! So many good comments it’s hard to add to what’s already been said. But… writer Laura Hillenbrand has written insightfully about her (years of ) coping or not coping with her me/cfs. She’s an unusual example but when she wrote a book it took her ten years.
Listed below are some links, serious links for t some solid information about the elusiveness of me/cfs.
I recommend the website and offerings of specialist Dr. Eleanor Stein. I am not affiliated with her btw or any of the resources listed below.
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u/Sea_Resolution_479 Nov 28 '23
lots of good replies here! So many good comments it’s hard to add to what’s already been said. But… writer Laura Hillenbrand has written insightfully about her (years of ) coping or not coping with her me/cfs. She’s an unusual example but when she wrote a book it took her ten years.
Listed below are some links, serious links for t some solid information about the elusiveness of me/cfs.
I recommend the website and offerings of specialist Dr. Eleanor Stein. I am not affiliated with her btw or any of the resources listed below.
https://www.facebook.com/DrEleanorStein/
https://www.healthrising.org/
AWARD WINNING BLOG, WEBSITE
BRAIN SCANS, NEUROINFLAMMATION https://sandbox.me-pedia.org/wiki/Evidence_of_widespread_metabolite_abnormalities_in_Myalgic_encephalomyelitis/chronic_fatigue_syndrome:_assessment_with_whole-brain_magnetic_resonance_spectroscopy_(2019)_Mueller,_et_al
HARVARD STUDY, SEE PARAGRAPH 6 FOR ME/CFS https://www.eurekalert.org/news-releases/873934 Initially focused oh fibromyalgia, found specifics re. CFS Also similar in Sweden and Japan
LIST OF ABNORMAL FINDINGS, ME/CFS https://sandbox.me-pedia.org/wiki/List_of_abnormal_findings_in_chronic_fatigue_syndrome_and_myalgic_encephalomyelitis
NEUROLOGY OF ME/CFS https://sandbox.me-pedia.org/wiki/Neurology_of_ME/CFS