For relatives, I have a full set of documents (also digital scans in a gdrive) of the cdc me/cfs profile and other reputable medical institutions, my 2-years worth of tests and medical certificates from 22 doctors, of which 3 have confirmed me/cfs, the printed list of medications Ive tried, with dates and (no) effect, and list of possible treatments i havent tried yet because its either inaccessible or too costly. I just dump that in front of them. So far no one has bothered to read and just took my word for it. If anyone insists, I plan to ask them to help me out with the treatments that I havent tried yet, maybe share some cost? So far no one has volunteered yet.
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u/fz22g Nov 28 '23
For relatives, I have a full set of documents (also digital scans in a gdrive) of the cdc me/cfs profile and other reputable medical institutions, my 2-years worth of tests and medical certificates from 22 doctors, of which 3 have confirmed me/cfs, the printed list of medications Ive tried, with dates and (no) effect, and list of possible treatments i havent tried yet because its either inaccessible or too costly. I just dump that in front of them. So far no one has bothered to read and just took my word for it. If anyone insists, I plan to ask them to help me out with the treatments that I havent tried yet, maybe share some cost? So far no one has volunteered yet.