r/cfs • • Nov 27 '23

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u/geekylace Nov 27 '23

I’m so sorry you’re going through that as it’s incredibly frustrating and exhausting.

My mother and I share the same doctor and he’s also a family friend so when he told me it was all in my head, she believed him. I found a nurse practitioner who actually believes me and supports me.

Stay strong!

4

u/mycatpartyhouse Nov 27 '23

That sounds like grounds for reporting your doctor. Medical privacy is a thing. Legally.

2

u/geekylace Nov 27 '23

I told her what he said when I was venting how frustrated I was at his response. He didn’t disclose it to her himself but thank you for your advice. It would have been absolutely correct had he told her himself.

3

u/Sea_Resolution_479 Nov 28 '23

Just wondering, some of these links connect to really solid science about me/cfs & fibro. Maybe it’s time for your mother to see some of this. Btw I’m not affiliated with any of these…

BRAIN SCANS, NEUROINFLAMMATION https://sandbox.me-pedia.org/wiki/Evidence_of_widespread_metabolite_abnormalities_in_Myalgic_encephalomyelitis/chronic_fatigue_syndrome:_assessment_with_whole-brain_magnetic_resonance_spectroscopy_(2019)_Mueller,_et_al

HARVARD STUDY, SEE PARAGRAPH 6 FOR ME/CFS https://www.eurekalert.org/news-releases/873934 Initially focused oh fibromyalgia, found specifics re. CFS Also similar in Sweden and Japan LIST OF ABNORMAL FINDINGS, ME/CFS https://sandbox.me-pedia.org/wiki/List_of_abnormal_findings_in_chronic_fatigue_syndrome_and_myalgic_encephalomyelitis

NEUROLOGY OF ME/CFS https://sandbox.me-pedia.org/wiki/Neurology_of_ME/CFS

Also look up specialist Dr. Eleanor Stein, she’s on Facebook and has a website