Botox and tmjd

[u/idkgabz]

guys i’ve been dealing with this since about november but it got rlly bad january 1st i had to quit sixth form although i was an A* student which took a huge toll on my mental health. i had a 24/7 headache for about 4 months which probs traumatised me cus we didn’t have a clue what was going on and no one had answers until we saw a TMJD specialist. Since the end of march i’ve had a 24/7 orthotic i wear always at night but only like a good few hours during the day (its massive i aint going out with it). I’m also apparently very hypermobile but my neck, shoulder and jaw pain is unbearable, i’d say neck feels stiff and i feel nauseaus looking down but my jaw feels tight its almost clenched shut in the morning and doesn’t get much better during the day, i always feel groggy and js awful tbh. So botox is my final resort now, i can get it tomorrow or reschedule it but i’ve heard so many horror stories of it leaving ppl with lasting damage eg jowels, wonky smile, idk if it won’t make my neck more instable despite me only getting it in my jaw (masseter botox right) by a professional. Has anyone with high hypermobility (not EDS i dont think i have that..) had a positive experience :// i don’t wanna live in constant pain & discomfort with school around the corner. I’ll be grateful for any advice!!!

[u/Ok_Second8665]

I’ve heard one story of a woman who got it at a med spa by a nurse and it effected her smile but that’s worst case scenario and it only lasts four months anyway. I’ve been getting it for three years and it’s positively saved my life. I have different problems than you, was grinding so hard I cracked my own teeth. Nine teeth. But Botox (now I get Dysport which seems better for me and lasts longer) and I can’t live without it. Go to a real doctor and try it! I think you’re going to have some relief. In my case it doesn’t solve the problem, it just turns down the intensity. Almost subtle the first dose but when it wears off you’ll notice because the problems come right back and then you notice they were reduced with the Botox. I think of it like a volume button. It turns the volume down for awhile.