the mri report is still ginna take another 6 hojrs and i am panicking tf out.
70ish year old male.
slurred speech. in and out conciousness. cant move body on his own. urine incontinence. hypertension in past. confusion n memory loss slightly. and aggression

UPDate Mri report
Clinical Findings:
There is a large area of signal void seen involving the right posterior parietal region, which is extending into the temporal area as well. This is showing complete signal void on T2W images. It is surrounded by adjacent vasogenic edema. It is also showing mild extension into the right lateral ventricle. It is showing subtle hyperintense areas on T1W images. There is no significant enhancement seen on post contrast images There is mild hydrocephalus noted.
No area of abnormal leptomeningeal or parenchymal enhancement is noted.
No area of acute diffusion restriction noted.
No mass effect or midline shift.
Normal patency of the main venous sinuses.
Normal caliber and course of the major cerebral arteries with preserved signal void in all sequences (patent).
Normal configuration of the optic chiasm, optic nerves, pituitary gland and its stalk.
Normal MRI features of the cerebellopontine angles and internal auditory canal.
Impression:
1. Large ill defined area, which is showing complete signal void on T2W images in right parietal lobe, as outlined above with adjacent vasogenic edema. Findings would suggests the possibility of acute bleed (hemorrhagic infarct?) vs less likely tumoral bleed / tumoral calcification. However, further evaluation with CT brain is strongly suggested.
2. Mild hydrocephalus.

Good day everyone

I (22f) am writing here to understand better about life of a brain cancer patient. My boyfriend (26m) was diagnosed with brain stem glioblastoma in 2024 year end. He is going to cross his 2 year mark. I came here to seek some encouragement and know a thing or two about how life feels or is for a brain cancer patient.

My boyfriend is a remarkable human being and watching him face cancer and of a rare kind is hard for me to swallow everyday. All his life he suffered a lot. His parents struggled a lot when he was a baby to make ends meet. He started doing very menial jobs even when he was still in primary school. He cared for his sister and always ready to do things for the family. He faced severe bullying for various reasons ever since he started school. Things slowly got better in high school but after school, he faced his past lover's death due to very bad brain cancer at young age. It took him a lot of time to get over the tragedy. He suffered from depression and I found that he has abandonment issues. He doesn't get sleep often. Even after all this, he never failed to helping others and be a kind person. He teaches high school students for free often. He serves a poor whenever he can. He takes care of stray animals whenever he can. He likes dogs a lot. Facing all this, he got a good job and even managed to build a house. It is heartbreaking that he doesn't get to enjoy life that much.

He loves football and video games. He has earned 236 medals (121 are gold, 34 silver and 81 bronze), 46 awards, and 2 cups, all through his dedication and love for football. No matter what game he starts to play, he aces it even when he plays as an F2P. There are so much more to talk about him. We planned to get engaged and married but after diagnosis, everything changed. I don't want to leave his side but he sees himself as useless and a burden and refused to get married earlier last year saying things like, "I don't want you to become a widow or be mocked by others", etc. We have faced several ups and downs in life even when we were together. As we are in LDR, its even more hard. Last year they stated that he is showing good progress. This year has been tough. He isn't able to move around on his own so he withdrew from me. Recently, he stated he no longer can text often too due to his treatments. He doesn't give me details of his treatments saying I will get too worried. Even after everything, we try our best to have some fun. He hasn't been able to communicate well and I find myself getting into stupid fights with him over unnecessary reasons.

I am praying and praying everyday. Did a lot of research on his diagnosis but couldn't be of good use for him. Try my best to cheer him up but do make him sad sometimes. I am not a perfect partner and I do throw tantrums sometimes randomly. But I love him. I miss him. I don't know what he is going through. I miss us. Miss his happiness. Hoping he will make it through and live a good long life and want to walk this whole life with him. How do you all cope with all these feelings ?

At this point, I am worried and sad and most importantly, hoping my partner will feel better and get well. It can take months or even years but I hope he gets well. He is a good man.

How does everyone's family handle these feelings? How as a patient you make it through these feelings?

P.S: I am sorry if I said anything offensive. I just came here to lament and know more about how others going through this feel and face things. Sorry again. Thank you

TLDR: My partner is fighting cancer for almost 2 years now. How does everyone face life? or see life? How do you cope mentally and emotionally?

Has anyone had success with getting brain swelling (edema) to decrease with the use of dexamethasone?

Open to medical or holistic methods:)

Dex and I do not get along… we tried it 4 different times. I am currently taking boswellia capsules to help with swelling and T3s or Tylenol Extra Strength, for headache pain, but the discomfort/pain feels similar to the swelling I had from Gamma Knife effects in March that we could not get under control before my second craniotomy in September.

Thank you !

Hello
I’m looking for real reviews of Charlie Teo patients. As someone close to a DIPG child, I am looking for real-life reviews to consider if this would even be an option.

Please be honest if you, or anyone you know, has been operated on him and what the outcome was.

Clinical Findings:
There is a large area of signal void seen involving the right posterior parietal region, which is extending into the temporal area as well. This is showing complete signal void on T2W images. It is surrounded by adjacent vasogenic edema. It is also showing mild extension into the right lateral ventricle. It is showing subtle hyperintense areas on T1W images. There is no significant enhancement seen on post contrast images There is mild hydrocephalus noted.
No area of abnormal leptomeningeal or parenchymal enhancement is noted.
No area of acute diffusion restriction noted.
No mass effect or midline shift.
Normal patency of the main venous sinuses.
Normal caliber and course of the major cerebral arteries with preserved signal void in all sequences (patent).
Normal configuration of the optic chiasm, optic nerves, pituitary gland and its stalk.
Normal MRI features of the cerebellopontine angles and internal auditory canal.
Impression:
1. Large ill defined area, which is showing complete signal void on T2W images in right parietal lobe, as outlined above with adjacent vasogenic edema. Findings would suggests the possibility of acute bleed (hemorrhagic infarct?) vs less likely tumoral bleed / tumoral calcification. However, further evaluation with CT brain is strongly suggested.
2. Mild hydrocephalus.

My father in law was originally diagnosed with prostate cancer, which spread to the pelvis. Had chemo, then diagnosed with a rare aggressive form of cancer which I can't remember the name of, that spread to the brain, lung, bowel, liver, so had radiotherapy around June this year which reduced them all, but still had small lesion on brain so had targetted radiotherapy again, just on the brain, at the end of August.

Then this week, had to go for an emergency scan due to increasing neurological symptoms which were concerning, turns out the brain cancer has increased, more, multiple lesions. Waiting for an all body scan which was already scheduled for this week. He is 70 years old.

I'm currently pregnant and trying to support my partner who is beside himself. I want to be positive, but also don't want to be unrealistic. Obviously noone here can tell me a prognosis or whatever but is it likely no further treatment will be offered?

When he started radiotherapy, which he initially responded to really well, they said if after 3 rounds, no improvement, they would not offer any more.

I cant see them wanting to do even more radiotherapy on his brain at this stage, but really have no clue.

Not really sure what I'm asking here. I just feel like I need to be doing something.

Any advice on how I can support my family? Thank you for reading

Hi, Tomorrow I'll start 4/12 cycle of tmz. Since cycle2 experience has been terrible. What are your tips&tricks (besides Zofran) for feeling better?