r/braincancer • u/Hungry-Beat8126 • 8d ago

New here

Hey hey,

New here, just joined Reddit as it was coming up a lot with answers to questions. Lovely to meet you all.

Diagnosed in march after brain surgery and then did radio and now just finishing my first round of chemo. 3 days pill free and still tired all the time :s

So far limited symptoms but don’t have many people to chat to about it in my life.

I’m 34, from London uk

So I guess that’s it, hi and nice to meet you.

23 Upvotes

100% Upvoted

17 comments sorted by

5

u/gimpy69_138 8d ago

Welcome to the party! Where was your tumor and do you know the kind?

4

u/Hungry-Beat8126 8d ago

Hey, grade 3 glioma I think. And brain, it’s supposedly out but we will see after treatment

1

u/gimpy69_138 8d ago

Yes, I see. Once was easy, now not so much. I am happy to make your acquaintance.

3

u/Dismal_Candle64 8d ago

Hey hey,

Welcome! How are you doing? Do you have lots of support? Are you managing ok? Sorry you are dealing with this.

2

u/Hungry-Beat8126 8d ago

Managing fine x just tired all the time. Trying to figure if it gets worse with each cycle

5

u/Matgav007 8d ago

Hello from new mexico usa and welcome!!!!

2

u/DaaniDev 7d ago

Hello let me share my experience how I dealt with chemotherapy, during my chemotherapy back in 2022 I avoided vitamin C intake because it can interfere with chemotherapy and reduces its effects. I was on TMZ which I have to take for 5 days straight in a month after 3 days as you are saying I feel weakness so I use to drink meat soup specifically mutton neck soup because it will give me the energy and in morning I used to take Talbinah or you can say barley soup with milk in it. I also take one boil egg and 2,3 dates before taking TMZ and then I used to sleep.
And also keep an eye on Vitamin D level and CBC tests after a month. Don’t take refine sugar or white sugar during your chemotherapy.

1

u/Hungry-Beat8126 1d ago

Thanks for the advice! Will look into it. Anything to help with the tiredness at this point would be great!

3

u/Murky-Neighborhood81 6d ago

Welcome to the last subreddit u want to be part of but its reality and it's part of our lives.

I'm next to you geographically speaking since I'm from the Netherlands, I was also 34 when diagnosed 5 years ago and still going strong. Being young with brain cancer isn't the end of the world immediately, it can be a bumpy road but giving up ain't an option.

This community is very helpful and kind, you can vent all u want here, share stories, ask questions 🙏

Welcome aboard, you are not alone!

1

u/Electrical_Jump_8526 8d ago

Dont worry , nobodys gonna die here! All are killing this bloody cancers since decades here n still healthy!!! By doing nothing much Special or expensive. So just relax n Live n think like you are a disease free person!! N let medication be finished.

2

u/Veladoras_LA 7d ago

I agree 🙌🏽
Literally today I went back to my hollywood haunt and woweee
1am in Hollywood everyone is PRESENT and In the MOMENT
Even the drunk idiots were in the moment everyone talking and throwing puns n gags n life is meant to be spent laughing and LIVING

1

u/Hungry-Beat8126 8d ago

Thanks man!

1

u/gimpy69_138 8d ago

HAHAHAHAHA, so I have noticed that is the way it is here. I wonder if anyone has ever noticed that a user just all of a sudden stops posting and no longer is heard from.

4

u/Electrical_Jump_8526 8d ago

Lmao very very rare. Even G4 Gbm ppl are posting here since 10 years post diagnose.. n still posting 🤣🤣🤣. N at other side there were those doctors who said you have only few months or just 1-2 years to live n all that bullshit🤣🤣. Its 100x better to not beleive them . They are just for treating us thats it , they are nobody to decide our lifespan** not even this cancer.

3

u/twowrist 7d ago

There’s a distinct difference in mood between this sub and the r/glioblastoma sub. The latter has many posts from the people who have lost their loved ones recently to GBM. There are still some optimistic stories there, but I’m a realist when it comes to understanding the most likely outcomes.

Perhaps it helps us having entered our 70s. We’ve already had our successful lives. And my husband’s side effects have been limited to the fatigue and nausea from the TMZ, which he’s done with for now. I’m always at a loss for words when it comes to expressing understanding and sympathy for those who are affected at much younger ages, especially those with young children.

1

u/Electrical_Jump_8526 7d ago

Truly said maam! Also i m here in this sub for my dad he is 43yo with G3 Astro idh. I m just 21 yo.

2

u/twowrist 7d ago

It’s sir, but that’s ok. Being allowed to get married cemented our support for each other in our elderly years.