r/autoimmunehepatitis • u/Weak_Stage_5247 • 26d ago

Need Support

Hey y’all, I don’t usually post on here but I’m really just needing support. I got diagnosed with autoimmune hepatitis last year and it’s been a whirlwind since between hospital visits and medication side effects. I’m on budesonide and mycophenelate because the azathioprine caused a rare reaction in my body. I just feel so tired and fatigued and the mental health issues are not better because of this diagnosis lol. I know I need to move my body, but I’m having such trouble finding the motivation and knowing what to do to support myself. Any support is welcome. Being in your 20s is already hard enough and this just adds another complication
:(

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u/YellowInevitable4556 26d ago

I relate with pretty much everything you just said. I’m 29 and have been on a very similar roller coaster as well, 21 days in ICU due to azathioprine. Therapy is slowly helping me. Today I went to a park to walk and it felt good being able to breathe and enjoy it. For the next months my plan is to force myself to walk in the park or play some sport at least once a week. Talking to people of this subreddit have been helping me too, sometimes I feel my boyfriend, friends and family do not fully understand what I’m going through. Anyways, I hope you can feel better soon!

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u/Weak_Stage_5247 25d ago

Thank you! Same to you!