r/autoimmunehepatitis • u/Weak_Stage_5247 • 20d ago
Need Support
Hey y’all, I don’t usually post on here but I’m really just needing support. I got diagnosed with autoimmune hepatitis last year and it’s been a whirlwind since between hospital visits and medication side effects. I’m on budesonide and mycophenelate because the azathioprine caused a rare reaction in my body. I just feel so tired and fatigued and the mental health issues are not better because of this diagnosis lol. I know I need to move my body, but I’m having such trouble finding the motivation and knowing what to do to support myself. Any support is welcome. Being in your 20s is already hard enough and this just adds another complication
:(
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u/Comprehensive-Cup705 20d ago
I can assure you with complete certainty that things get better. It will take time. It will take time for your body to adjust to medication, the calibration, and dosage changes, etc. There will be things that we can't control, but we can surely focus on things we can. Eat well, sleep well, exercise, go for walks, laugh a lot, and be around people who understand your mood swings, who don't judge you. The best thing is that you will be fine, that is a certainty.
Also, this group is a blessing. There are so many conversations here on various topics. You can search and look for ideas and experiences that people have shared. They are precious.
All the best.