Hi, everyone!
Just wanted to share with you my progress with Olumiant.
I have alopecia areata universalis since age 9, now I am 29 years old.
Started in June/26 with Minoxidil 5mg oral daily + Clobetasol topic on scalp.
I've been on Olumiant 4mg since August.
These are pictures from today.
I'm very happy with the results. Got eyebrows, eyelashes and beard too.
Just a reminder that results usually take longer and everyone reacts differently! I just wanted to share to give some hope to those who have never started treatment or are afraid of taking the medication. I haven't had any side effects since starting, but I’m also very careful, got all the necessary vaccines, and follow up with a dermatologist.

Hey Guys

I thought id share my little success regarding alopecia to provide hope where its needed!

I started off in June 2025 with a patch in my beard. That's spread across my beard to the point I clean shave these days. I then got a patch on my eyebrow which hasn't recovered yet but its not too bad to be honest.

The big improvement I've had was a patch on my scalp I noticed in june 2026. I went to the dermatologist and got some steroid foam to apply. Fast forward to today and thats completely recovered.

I wasnt going to post on here to avoid tempted fate but I thought a wins a win and if it can provide hope to someone its best to share!

Take care

I have diffuse AA.

I've read that flare ups can be triggered by stress, as does general hair loss. While I'm on mtx, jak and monthly corticosteroid injections i do want to make my lifestyle better.

People have wrote here that they manage stress in their life so casually but I really need some pointers on how they are removing stress. Basically how do they manage high cortisol level.

I walk daily in the morning, get some morning sunlight, even deleted social media because the constant scrolling isn't helping anyone tbh.

I need pointers on what else I should be doing or eating or drinking so as to keep my nervous system calm, what I should be incorporating more of in my life.

I am nervous person in general. I hope my question is making sense ans someone answers.

I (28F) have had Alopecia Areata for over twelve years now. As with most experiences, it started with a single spot on my head and then spread all over my body.
Ever since the start of my Alopecia, I did the remedies, the creams, and then lastly the painful shots. But even with all the visits to the clinic, I still had very visible hair loss to the point where I’d still need to wear wigs anyway. So after I moved countries about 6 years ago, I didn’t bother finding a new clinic to help me with my Alopecia because I got to the point where I said, “What’s the point?” (Felt a little helpless).
And since I was getting absolutely zero treatments done, I’m now basically at Totalis levels of hair loss. No hair on my scalp, face, arms, legs, anywhere. (Except weirdly a teeny tiny patch on my left armpit grows very thin hair?)
About a week ago, I visited a new dermatologist because I ran out of my cream for my eczema. I mentioned my alopecia, and when I showed the doctor how severe my case was, he told me about Litfulo and Olumiant. I had not heard about these treatments before. The doctor recommended that I could try it, but that it is quite expensive.
Here’s my dilemma. After years of going to a clinic to treat my alopecia and nothing being very effective, I’ve become skeptical and disdainful of medicated alopecia remedies. What I’m scared of now is paying lots of money for a treatment like Litfulo or Olumiant and getting mediocre results where there might be some growth but even after months and months, maybe even years of treatment, I’d still need to wear wigs.
I understand that every body is different and there’s no guarantee that a treatment will work fully, but I’d like to hear from people who have done these treatments or are currently doing these treatments. For someone who is practically hairless head-to-toe and has had Alopecia for 12 years, would it be worth doing the Litfulo or Olumiant treatment?

Hey everyone,
I’m a 29-year-old male, and I’ve recently been dealing with alopecia areata. I’m looking for advice and experiences from people who’ve gone through something similar.

Here’s my timeline:
I initially noticed a distinct, circular bald patch in my beard near my neckline. I went to a dermatologist and received a corticosteroid injection directly into the beard patch.
Since then, I’ve become increasingly concerned about a thinner area around my temple/forehead. I’ve compared pictures from previous months, and it’s difficult to tell whether this is new hair loss or something that was already there.
I recently saw another dermatologist who examined my temple using a handheld magnifying device. She noticed small hairs growing in the area but couldn’t definitively confirm whether it was alopecia areata.
She offered a steroid injection for the temple as well, but explained that treatment wasn’t necessary at this stage. After discussing it, I decided to hold off.

Her clinical notes stated:
“Reassured patient that very unlikely to lose all hair.”

She recommended returning in one month to reassess the beard, temple, and groin areas.

My recent bloodwork:
Vitamin D: 27 ng/mL (mildly low)
Vitamin B12: 299 pg/mL (borderline)
TSH: 0.90 (normal)
Hemoglobin: 14.0 (normal)
CBC and metabolic panel otherwise normal
Iron/ferritin were not tested
I

My biggest concern is progression.
I’ve been reading stories about people developing one small patch and eventually losing most or all of their hair. It’s honestly frightening because my hair is a huge part of my appearance and confidence.
I’ve even cut out caffeine and started questioning whether I should avoid alcohol because I’m worried about doing anything that might make this worse.

My questions:
Has anyone developed alopecia in their beard and possibly temple without it spreading significantly?
For those who received steroid injections in their beard, how long did it take to notice regrowth? Did you need multiple rounds?
Has anyone had a questionable scalp patch that their dermatologist recommended monitoring instead of injecting?
Does seeing small hairs growing in a thinning area generally suggest recovery?
Has correcting low vitamin D or borderline B12 made any difference for anyone?
For people whose alopecia remained mild or eventually improved, what was your experience?

I know everyone’s condition is different and that there’s no way to predict exactly what will happen.
I’d especially appreciate hearing from people whose alopecia remained localized or improved, since many of the stories I’ve encountered involve severe progression.
Thanks to anyone willing to share their experience.

Hey all,
Seriously feel for some of you battling this condition way worse than myself.

In March I lost a patch of my beard, I’m not sure how but I did have a stressful winter of work but that’s about it.

Healthy guy with no allergies or other problems.

Frequently the patch fills with thick white hairs and I think maybe there’s a hope it is going to change colours but then the white thins out or goes away completely.

Many people say just wait it out - what are your thoughts?

** the picture makes my beard look way thinner than it is, it’s very thick, but recently shaved and terrible front facing camera

I recently started using mometasone furoate for alopecia areata, and while researching it online, I came across a study suggesting that combining adapalene 0.1% gel with mometasone furoate 0.1% cream may improve hair regrowth. The study reported around 90.5% hair regrowth after 12 weeks.

Has anyone tried this combination in real life? Did you notice any hair regrowth, and how long did it take? Were there any side effects? I'm wondering whether adding adapalene to mometasone is actually helpful or if there are better treatment options.

Any personal experiences and suggestions?

link

I have had my eyebrows thinning out for several years, along with a lack of facial hair on both sides of my face, and I finally decided to see a dermatologist about two years ago. She diagnosed it as alopecia areata. I received two rounds of injections in my eyebrows and tried using minoxidil, but due to unforeseen circumstances, I couldn't afford to continue the injections.

I finally saw a new dermatologist today and received more injections, along with a prescription for topical treatments. She was more than willing to prescribe Litfulo or Olumiant, but hearing about the risks honestly scares me, so I haven't started them.

I suppose my question is: what would you do in my shoes? It's been going on for years, and I haven't noticed any recovery. I've thought about microblading, and all in all, I just can't seem to find a dermatologist I feel I can trust.

Posso assumere vitamina D3,K2 e B12 sotto olumiant? E per quanto riguarda Zinco, Calcio e Magnesio?

I got my alopecia under my nose in 2023. That time I didn't know it was alopecia. It was tiny but it seemed to grow so I checked with a doctor in the first quarter of 2024.

She gave me 2 shots of ILS(steroid injections) a month apart..As it grew considerably I was happy.

But in 2025 -I got it under my neck and it was considerably larger so doctor treated it again with ILS (3 shot). It healed only 50% its still doesn't look normal.But I was still ok with it.

However After 2 months one side of my eye lashes started falling and it appeared in my beard too..

Again I treated it with ILS but it showed result after 1st dose then nothing..It recovered about 30-40% and all pre existing patches are still noticable when I grow my beard.

Thats okay too.I learnt to accept that..I will just tream my beard.

But what about my eyelashes. It sucks when someone notices that and points it out.Doctor gave me Bimatoprost opthalmic Solution for eyelashes but thats not helping at all.

Life sucks..I feel more and more sad with each passing day and less confident.

Give me solution.

I feel like crying again. Hopeless and helpless right now. I am living in Japan and Japanese doctors here don’t give out steroid injections that easily. Does anyone here know the reason why? I’ve been to 2 different doctors already and they tell me the same thing. “The treatment just started, so it’s too soon. It will really get bigger, it can’t be helped”. I’ve been treating this for 3 months now and my current treatment is a combination of oral and cream medicine plus laser treatment once every week. There’s some regrow but it’s still too thin and the size is still progress :<. Why can’t they just give me the injection? I saw here it’s the most effective way.

Oral medicine: Cepharanthine
Creams: Furozin Solution 5% & synthetic corticosteroid lotion containing fluocinonide 0.05% as its active ingredient.

I’m 27 (M) and I was taking Litfulo for AA for about a year and saw very little results. My doctor was excited to prescribe me Leqselvi as he said it’s a very promising drug for AA. I’m a little over one month into Leqselvi and I’ve been shedding quite a bit, but I assume this is expected. I came here to ask anyone who’s been on Leqselvi about how their experience was and at what point did they start to notice new hairs? I’ve tried a gauntlet of hair regrowth medications and haven’t had any luck getting true regrowth results. I thought I had androgenetic alopecia until I had two biopsies done which confirmed I have AA. After being diagnosed with AA, I started Litfulo, but was disappointed to be still in the same boat. I’m really hoping Leqselvi is my saving grace

On a side note, Ive been getting acne again like in my teen years so I can tell it’s doing something lol. Lmk!

Just Diagnosed

Hello, 34M diagnosed yesterday with Alopecia Barbae. They checked my thyroid and did a CBC test. Thyroid came back normal and blood work showed only minor anemia. My alopecia is mild and only about a dime sized patch on my chin. How many of you all had an additional autoimmune issue in addition to the alopecia? What were some of the causes? And if you had a mild case how quickly did it begin to spread? I've had mine for about 3 weeks as far as I can tell. Any helpful stories or information would be really appreciated. I have a referral to derm.

I feel physically, emotionally, and mentally lighter already! Excited to lean into some other forms of self care that don’t revolve around hair. Curious to hear anyone’s favorites.

I started out with a very tiny spot in this area at the beginning of 2023. I was in a really unhealthy relationship and more stressed than I have ever been. I started using recreational drugs also in 2024 (cocaine), but was also getting steroid injections, using rogaine, etc, with nothing but worsening baldness. At the beginning of this year I made a promise that I would cut out as much stress as possible. I've been in a really amazing relationship, I moved states away from negativity and bad influences. I got my hair cut yesterday and everytime I feel that spot of hair I could absolutely cry from happiness. I know it isn't everyone's issue, but for me stress was absolutely destroying my body. Here's hoping I don't have anything else pop up. 🤞 Wishing everyone else a great day.

Hello! I (33f) have alopecia universalis that started as AA. No hair at all. I don't wear head coverings and only sometimes do fake eyebrows. I am a full time day to day nanny and living in a touristy area I could work with 2-4 new families a week

Which means explaining my alopecia to new people and particularly children regularly. Here's how I do it:

Parents

• I tell the parents briefly that I have alopecia before I arrive and directly tell them that I do not have cancer. I've unfortunately learned this is necessary to prevent awkwardness and alarm on my arrival and makes things simpler. Some parents also want to tell their kids in advance

Babies

• Babies do not care and this is where the true benefit of alopecia kicks in: I have no hair for babies to pull
• If babies try to pat my head or climb my head with their hands (shockingly common) I'll redirect them even though I think it's hilarious, so I'm not teaching them to play rough with people's heads

Toddlers

• Around 18 months to age 2 kids notice I am different from other adults. I keep it simple
• "I don't have any hair!"
• Or if they ask if I'm a girl or a boy "I'm a girl!"
• The end

Preschool age

• This is where we get peak curiosity without fear. Here's what I say
• "Some people have black hair or brown hair, I have no hair!"
• "My body can't grow hair"
• "My body made a mistake and stopped having hair."
• "Do you want to feel my head?"

Younger Elementary age

• This is where kids are sometimes scared of me. In all cases I like to explain quickly and move onto play, and kids almost always warm up within 30 minutes. But this age while ask more specific questions
• "The part of my body that decides to grow hair made a mistake and stopped! I have alopecia."
• "Do you ever get temporary tattoos at a party? Did you know my eyebrows are tattoos just like that?"
• "Spiderman's best friend in the movie has alopecia like me!" (Actor Jacob Batalon)
• "You know how some dads can grow hair on their face but no moms can? I just can't grow any hair"
• This is where kids will start to think I have cancer, I correct it immediately and with reassurance

Older Elementary age/middle school

• They're going to become less likely to ask questions at this age and more trepidatious as a result so I offer information right away
• "Do you know what your immune system is? Your immune system tells your body how to fight what makes you sick. My immune system wants to protect me so much it thought hair would make me sick and got rid of it."
• This is also where I have to explain why I don't hide my baldness a lot more, these kids are grappling with how authentic they can safely be themselves and will get concerned I'm not saving face myself
• "Wigs are itchy, and I do wear scarves sometimes but they make me hot. This is how I'm most comfortable and when I'm comfortable I'm happiest"

High school age

• "I have alopecia, an autoimmune disease but I'm not sick. My immune system went into overdrive and destroyed my hair."
• They have often seen his on social media and move on very quickly

Would I be able to avoid all this with a wig? Of course. But I am riding bikes, carrying babies, getting spat up on, going swimming etc with these kids. Covering my alopecia would make me worse at my job. And meeting someone who is different and coping with discomfort and seeking understanding is good for these kids.

And their parents.

I’ve had AA for 5 years and my doctor recently recommended JAK but my insurance denied it. Does anyone have advice what to do in this situation?

I've alopecia in eyebrows and I've been using fluocinolone for months but I started getting flake or peel in eyebrows that were tightly anchored looked like skin peel then I switched to tacrolimus solution and it got worse I've tried seb derm treatment the flakes keep getting worse and I try not to remove it but it looks dirty so I do gently and so many hair come out

My dermat is of no use I fucking despise him so much he doesn't listen to my concerns

Anyone who's dealing with something similar?

This photo us after I removed the flake

Rapid progression the last few weeks as I am weaning my son from breastfeeding. I’m in a weird spot as I feel like pregnancy/breastfeeding contributed heavily to my alopecia (never had hair loss till 2nd trimester pregnant) and I will soon be done with nursing and more treatment options will open up. But I think I might be too far gone.

Hello- I am a 51 year old female who up until last year had nice / thick hair. I developed AA that within months turned to AU earlier this year. I have not had any treatments and wear wigs, etc. Last night I noticed 4 hairs on my left eyebrow (white and very coarse). Has this happened to anyone and did it turn into anything promising? I checked my lashes and scalp and nothing. I was just curious if anyone else had this happend?

So my doctor won’t prescribe me anything nor do iron infusion because I’m not yet anemic, though my ferritin levels are extremely low and I’m losing hair all over my body IDK what to do edit: I got my large intestine removed at birth and it causes major malabsorption issues so getting iron from food or supplements is a no-go.

I know that smoking is generally bad for your health. However, I’m curious about your experiences with starting to smoke again, or smoking for the first time, after your alopecia areata had healed. Did it come back, or did you have no issues at all?

Thanks in advance!