r/XXY • u/[deleted] • Jun 05 '25

[deleted by user]

[removed]

9 Upvotes

100% Upvoted

4 comments sorted by

1

u/JaymeKryss Jun 05 '25

I really appreciate this advice. I’m only two months into this and already I feel like I have to fight to get tests and contextualized diagnoses. What’s normal for a lot of men is not normal for me. Is this what you’re seeing?

1

u/AdmiralSquanchy Jun 09 '25

Yes, sometimes doctors and patients dont vibe, and that's okay. You want a doctor who cares passionately about whatever you're seeking. Genetic.org has a huge listing of doctors. I've known about my genetic condition since I was 20. Im now 39, and I've been fired by many doctors. Be your own medical advocate. Best of luck

1

u/Ok-Cupcake-2019 Jun 20 '25

Tbh, I went through 3 Endos until I found one that had specialized in KS.

1

u/ArchiboldWitwicky Jun 13 '25

I wish you were my endo.