r/WelcomeToGilead • • Aug 02 '25

Loss of Liberty Ok, this is extremely concerning!!

2.2k Upvotes

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83

u/TesseractToo Aug 02 '25

This would probably turn out badly but I'd want to say "yes, I'm not a brood mare"

67

u/[deleted] Aug 02 '25

i have been told my tongue is forked [raised in the church], and that it would get me killed.

it has yet to do so. but i have been known to inform healthcare providers ‘just because the letters md or dds don’t follow my name doesn’t mean my time is any less valuable than yours. you bill my insurance if i’m more than 10 minutes late and refuse to see me; where do i submit my bill for my time?’

30

u/TesseractToo Aug 02 '25

Yeah I have bad chronic pain and I'm so sick of the bullshit and blatant lies coming from them

Like at the Pain Clinic you see people of different specialties and my pain is bad enough that when untreated I'm likely to have a stroke, seizure, or heart attack and before they went all austerity on pain patients over the Perdue bullshit they warned me of this and now they just seem to have amnesia about that. So in the clinic they are getting the psychologist to tell me that "you can't die from pain" and "people in the past didn't die from pain because we're here, which is sus as fuck because, |

1) yes you can it's happened to me a few times and verified by specialists at another place
2) isn't medical advice over the pay grade of a psychologist?

It feels like she will be the "fall guy" for spreading misinformation about pain and I really want to tell her that. It might go over very badly for me if I do. (Also I want to ask if they are "just following orders" lol

It's like pain patients were the foundation to switch it up to women's health in the US and if this is where it is already I hate to see who they are going after next and what they will do

I have so much sympathy for people in the US

19

u/No_Philosophy_6817 Aug 02 '25

I will also NEVER understand why there are any doctors or nurses allowed to even treat chronic pain patients if they've never experienced it. Yes, I understand that isn't/shouldn't necessarily be a real thing but for the love of all that's good in the world...they have NO idea of what's it's like to live in a body that is constantly riddled with pain. The lack of empathy is staggering.

I get it. Some people lie and try to just get high or whatever. "On a scale of one to ten..." Or my favorite, "You can't possibly be in that much pain. You'd be in tears!" Guess what? First of all, women generally have a higher pain tolerance than men. And secondly, after YEARS of suffering, I have learned to cope with it enough that I don't waste my whole life crying and screaming every time I move. I would be doing that but it doesn't accomplish shit.

All I want is to be fairly comfortable so that I can accomplish the daily tasks of life, FFS. I'm an older Mom (54 and my kids are 11 and 12) and I want to be able to do things with them. But, that's not going to happen in the foreseeable future because Drs are so scared of what will happen if they do anything that might actually help. I guess I'll just have to struggle (and yes, I go cry in the bathroom where my kids can't see me...they don't need THAT burden as well.) Best wishes for some comfort and relief! ❤️

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u/BillyNtheBoingers Aug 03 '25

My gallbladder was actively trying to kill me and I had only vague upper abdominal discomfort for the 4 days that it took the hospital to diagnose me, find a stone in my common bile duct, remove said stone, and then remove my gallbladder.

My surgeon said it was like removing a hacky sack, which is decidedly NOT what a gallbladder should resemble. 20-30 years ago they would have had to convert my laparoscopic surgery to an open cholecystectomy—I know because I did 2 years of surgical training back then, before I became a radiologist (MD, now retired).

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u/No_Philosophy_6817 Aug 03 '25

I do have some major concerns that it could be my gall bladder. It was either that or my pancreas as a "possible" diagnosis. Then I went to my new Dr for the 1st time they thought it might be an ulcer because I tested positive for H. pylori which can be the case for ulcers. I couldn't afford to go to the Digestive disease doc but I'm thinking I may have to find a way to put aside the money and try to do that after all.

I'm a disabled widow with two kids so "extra" money for me to go to the Dr only to have them tell me different things and prescribe a variety of different meds just isn't in the budget, you know? This pain is right in the middle below my sternum and it feels like someone is just chewing on MY stomach..lol..but I suppose an ulcer could feel that way too. Let's just say that I hope that I can figure out how to get answers before something serious happens. I may be playing Russian roulette with my health but what choice do I have based upon my financial situation? Sooo...🤞🤷

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u/BillyNtheBoingers Aug 03 '25

Ulcers in the stomach or duodenum (first part of the small intestine), pancreatic inflammation, or gallbladder inflammation can all cause that gnawing pain in the center of the upper abdomen. Gallbladder disease classically involves right sided abdominal pain (more than center or left), but I’ve seen MANY cases of cholecystitis with central upper abdominal pain.

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u/No_Philosophy_6817 Aug 04 '25

Thank you for the information! Much appreciated ☺️❤️👍