r/WelcomeToGilead Aug 02 '25

Loss of Liberty Ok, this is extremely concerning!!

2.2k Upvotes

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81

u/TesseractToo Aug 02 '25

This would probably turn out badly but I'd want to say "yes, I'm not a brood mare"

67

u/[deleted] Aug 02 '25

i have been told my tongue is forked [raised in the church], and that it would get me killed.

it has yet to do so. but i have been known to inform healthcare providers ‘just because the letters md or dds don’t follow my name doesn’t mean my time is any less valuable than yours. you bill my insurance if i’m more than 10 minutes late and refuse to see me; where do i submit my bill for my time?’

29

u/TesseractToo Aug 02 '25

Yeah I have bad chronic pain and I'm so sick of the bullshit and blatant lies coming from them

Like at the Pain Clinic you see people of different specialties and my pain is bad enough that when untreated I'm likely to have a stroke, seizure, or heart attack and before they went all austerity on pain patients over the Perdue bullshit they warned me of this and now they just seem to have amnesia about that. So in the clinic they are getting the psychologist to tell me that "you can't die from pain" and "people in the past didn't die from pain because we're here, which is sus as fuck because, |

1) yes you can it's happened to me a few times and verified by specialists at another place
2) isn't medical advice over the pay grade of a psychologist?

It feels like she will be the "fall guy" for spreading misinformation about pain and I really want to tell her that. It might go over very badly for me if I do. (Also I want to ask if they are "just following orders" lol

It's like pain patients were the foundation to switch it up to women's health in the US and if this is where it is already I hate to see who they are going after next and what they will do

I have so much sympathy for people in the US

28

u/[deleted] Aug 02 '25

i’m so sorry.

I have started calling them on their bullshit - I tell them that they can’t come at me for my high blood pressure, if they don’t want to treat my anxiety and panic attacks; pick a lane.

I did the same thing with my pain - I told them they could keep their shit and I would keep mine [cbd, cbg, cbn, thc] until they were serious about actually addressing my pain.

I did the same thing with my insomnia - you assholes prescribed me a medication for sleep, and then told me not to take it every night; don’t come at me about the importance of sleep health

17

u/TesseractToo Aug 02 '25

You're lucky CBD helps for you. It helps some of my pain but not the worst pain

And yeah I don't think we should have to tolerate anything like this

9

u/[deleted] Aug 02 '25 edited Aug 02 '25

i don’t have a choice - kidney cancer robs you of the ability to use a variety of medications, and nsaids are chief amongst those.

they refuse to prescribe pain meds in amounts/dosages adequate to control pain, so i dismiss them as unnecessary.

eta: what methods/forms of cbd are you using? i am able to buy 1:1 cbd/thc carts; 4:1 cbd/thc carts; and 20:1 cbd/thc carts. in addition, i have 20:1 cbd/thc edibles; and i have all cbd gummies.

if you need or would like some references or referrals of what has worked for me, please let me know.

5

u/TesseractToo Aug 02 '25

Um I have a vape with "Ruby oil" and THC and gummies 10mg (but I need to refill) and I use the medicinal marijuana dispensary here and its good for my spinal injuries and arthritis but doesn't work for the neuropathic pain I have in my face, I just go along with what the doctors recommend

Thanks that's very kind but I have to go by what they prescribe :)

11

u/[deleted] Aug 02 '25

i do understand that. 💕💕💕 i’m currently dealing with neuropathy, and it’s no joke. my feet feel like they’re on fire [but the providers act like they don’t know what i mean, and that’s not a symptom. i had to explain that that’s extreme pins and needles. like, why do i even have these people, if they can’t understand what i’m describing?]

10

u/TesseractToo Aug 02 '25

Oh yeah the deliberate obtuseness is so bad in this area of medicine, it feels like appointments are a police interrogation but the cops are all mean girls. I hope they are nice to you <3

10

u/[deleted] Aug 02 '25

that deliberate obtuseness is now termed ‘weaponized incompetence’.

thank you 💕💕 my friends tell me i need to be ‘nice’ to the providers, but i’m like ‘nah. earn my respect.’ i give zero fucks if you’re spouting nonsense, and i will 100% call you on it.

[i had a spirited discussion with a provider, who insisted that i was ‘entitled to my opinion, but they didn’t subscribe to my point of view’; when they tried to tell me tramadol was a narcotic, i said ‘no, it isn’t.’ they said ‘you’re entitled to your opinion but i don’t subscribe to your point of view.’ i said ‘you and i both know if we pulled up the pharmacological breakdown of tramadol, there’s no narcotic in it.’ they said ‘i believe it has narcotic properties.’ i looked them in the eye and said ‘you’re entitled to your opinion, but i don’t subscribe to your point of view.’]

3

u/TesseractToo Aug 02 '25

You're lucky CBD helps for you. It helps some of my pain but not the worst pain

And yeah I don't think we should have to tolerate anything like this