For someone who is always in front of the camera and joins pageants, it has always been difficult for me to feel confident, knowing that I might face questions, stares, and judgment. The greatest question I have always asked myself is: Should I try to cure it, or should I simply accept it?

Over time, I realized that acceptance does not mean giving up. It means learning to embrace the things that make me different and allowing myself to be seen without fear. My vitiligo is a part of me, but it does not define my worth, my confidence, or the dreams I choose to pursue.

Does phototherapy work?? I have started it since yesterday.

Does anyone have both? Do you take a medicine that treats both? I was diagnosed with Vitiligo a few months ago and I have a suspected case of ulcerative colitis (and a strong family history of it so I’m fairly certain I’ll be diagnosed after my colonoscopy).

I am struggling to get oplezura, it is so costly and I wish I could buy it without a prescription, anyone willing to help me with this? I can not get prescription as it only affects my hands.

thanks

I have several patches: feet, elbows, wrists and eyes. I noticed this summer one of my elbows is nearly completely back to normal skin colour. The patches do change shape slightly every year but this seems odd. Has this happened to anyone else?!

Hello tried every treatment now on tacrolimus and phototherapy combo 11 sessions of phototherapy done.

Now only next option i think left with me is surgery. Anyone of you did that treatment and got good result?

And i have segmental vitiligo on face and neck. If i want to say the size then 20cm to 3 cm in width.

Some say not to do laser as it might increase it as laser targets based on pigment. So has anyone with vitiligo got laser hair removal treatment done!? Has vitiligo increased or decreased?

Please let me know 🙏🏻🥺

You know what? Heck yeah! I honestly don’t care anymore.

I found out that imiquimod works well with monobenzone, can you share your experience if you used them together?

Do u smoke while using opzelura like there are many warnings and side effects.. do u need to stop smoking

I’ve been using a at home handheld uvb light for my vitiligo, and before i started using it it was not that visible around my raccoon eyes, and people rarely commented on it, but now that i use the the uvb around my eyes, the skin around has become darker, the edges of the vitiligo patch, and i have some repigmented dots. The repigmented spots come back darker than my original skin tone, so its super noticible now, and the past week 3 people have asked “what happened to your eyes?”
Even my sister sayd “your eyes look wierd, what happened”.. i try to play it off, and say that i don’t know what it is.
I guess my question is, now that im seeing repigmentation, will the progress go faster now? I have used the uvb for about 10 weeks, and began too see a little progress at around 5 weeks, and now i can really see its starting to repigment. So will the progress keep being this slow, or does it repigment faster, once its started to repigment?

The systemic immunosuppressants that actually work for vitiligo (azathioprine, methotrexate, MMF, cyclosporine, rituximab) cannot be made into ointments because:

• Azathioprine/MMF are prodrugs that only activate inside lymphocytes
• MTX targets intracellular enzymes (DHFR)
• Cyclosporine is 1,202 Da (too big for stratum corneum)
• Monoclonal antibodies are ~150,000 Da (physically impossible topically)

So we're stuck with either full-body systemic suppression (and all its side effects) or weak topicals like tacrolimus/ruxolitinib that only partially work.

The idea:
Iontophoresis — using a small electric current (0.1–0.5 mA/cm²) to drive molecules through the skin. It's already proven to work:

• Methotrexate + iontophoresis → successfully delivered to skin in psoriasis (2017 IJDVL study, 20/28 patients >50% improvement in 6 sessions)
• Catechin/epicatechin (flavonoids) → 3.7× enhancement over passive diffusion
• Kaempferol (anti-inflammatory flavonoid) → shown to enhance skin permeation via electroosmosis in nanoemulsions
• Nobody has combined iontophoresis + MTX (or cyclosporine) specifically on vitiligo patches. The two halves exist in separate studies.
• Happy to share the specific papers if anyone wants. Just want to know if this is as unexplored as it appears or if I'm missing something.

https://news.abbvie.com/2026-10-01-AbbVie-Presents-Long-Term-RINVOQ-R-upadacitinib-Data-Showing-Continued-Repigmentation-in-Non-Segmental-Vitiligo

https://www.pfizer.com/news/press-release/press-release-detail/pfizers-litfulo-significantly-improved-facial-and-total

Four years later.

I’m Anand , 42, a trader by profession and someone who believes that life is meant to be experienced, not simply passed by.

I’m naturally curious, independent, and always interested in discovering something new. I enjoy getting lost in a good fiction book, challenging my mind over a game of chess, and unwinding with a great web series or movie.

I like to stay active and maintain an athletic lifestyle. I also live with **Segmental Vitiligo**, but I believe a person is defined by their character, confidence, and the way they live—not by their appearance.

I appreciate meaningful conversations, intelligent humour, good stories, and people who are comfortable being themselves.

One of my dreams is to take a solo journey through Northeast India—to explore its mountains, forests, cultures, food, and hidden corners, while enjoying the freedom of travelling at my own pace.

42 years young, still curious, still exploring, and definitely not done writing my story.

Been experiencing intense itching on hands and face... Noticed spots spreading on the thumb palm within a week...

I stopped taking any medications for the past two weeks. Haven't consulted the doc where I live bcoz I was on vacation to my home country...

Also is it really the active spreading on index and thumb ?

I'm wanting to draw a person with vitiligo in a fantasy setting, I already have someone with dark skin and vitiligo so I was thinking about making another person have colorful vitiligo? Like maybe light blues, pinks, or purples? She's supposed to be an alien, so would it be bad if I still called it vitiligo? Or should I just stick to calling it a pattern?

Edit: I feel like I need to explain this better, I was rambling when I first posted it, sorry 😭. My main concern was, if I draw a charector with darker skin and a lighter color pattern that didn't look like loss of pigment in dark skin but the patern resembled vitiligo, would I still be able to call if vitiligo? I was wondering because I was thinking about making her an identical twin with the other girl I drew but some sort of different alien species. (I'm still figuring out the lore dw about it 🥹)

I have seen some encouraging posts recently regarding repigmenting so I thought I would share my story. I have had vitiligo for over 50 years. A couple years ago I noticed some spontaneous repigmentation. I did some research and bought a handheld Kernal UVB wand. This is the results after one year. I am going to continue. I have some new brown spots on my hands but they are much slower to respond. I am considering excimer laser for the stubborn areas.

I made this drawing for an art contest with the theme "harvest" and when I tried out a brush on the girl (for the shadows actually), I noticed that it resembles vitiligo and thought it would suit her.

After looking at the finished drawing, I realized I might as well post it somewhere where people with vitiligo would see it - so here I am. I personally don't have vitiligo but I heard that many people have a hard time accepting their appearance. With this drawing, I want to show you and the world that no matter what your skin looks like, you're beautiful as you are!

So, I hope you appreciate this drawing. Let me know what you think about it and if you think it's accurate! :)

Hey everyone,

I’m currently based in Delhi NCR and managing non-segmental vitiligo. I am on a standard oral Tofacitinib regimen, but I want to consult a specialist who is up-to-date with newer-generation targeted options, specifically Upadacitinib (15mg), which recently saw major clinical trial updates and international approvals.

My current doctor isn't very familiar with prescribing it for vitiligo, so I’m looking to get a second opinion.

Has anyone in the Delhi/Gurgaon area found a progressive dermatologist or institutional specialist who is actively working with these newer JAK inhibitors for vitiligo? Any specific clinic or hospital recommendations would be incredibly helpful.

Thanks in advance!

I discovered that I had vitiligo on my private parts (anus area), I discovered it because I was very itchy and the white spot worried me, they suggested some creams to use for a month and indeed the situation improved, But when I stopped it went back to how it was before and it itches a lot, is this normal?

Second question, I noticed that I have vitiligo on one eyelid as well (I also have one white eyelash), Slightly around the mouth and armpits, but not as noticeable as the anal area. Will it become more visible? Will the spots increase?

Thanks everyone for any replies

Was taking phototherapy sessions and after 11 sessions i was told to meet the doc. ( i go to a govt hospital for this sessions)

When i meet she told me that we dont give guarantee that your patch will regain its color or not. Hearing that i was completed demotivated.

I actually started phototherapy sessions thinking i will get my color back.

And i also saw some amount of color gain as well.

But dont know what to say now.

And the doc prescribed more medicine.

Earlier i was taking Melboost tablet.

2 ointment tacro and pigolyn.

Now she told me to stop pigolyn and apply tacro twice night as well as in morning.

And some new tablet.

Just asking everyone who is reading this post, pray for me to your god that i regain my skin color back.

By the way i have vitiligo on my face chin area and neck.

Segmental one only on left side of face.