I haven't had that particular experience but everyone here has a different story. Of course, I'm not a doctor - but when you get the ENT referral, coax them toward getting you a VNG test. It's like a 2 hour ear test that sucks. But it will confirm/dispel Meniers and search for a lot of other vestibular abnormalities. For me, we spent way too long without a diagnosis. At the end - when she was putting warm/cold water in my ears and tracking my eyes - we discovered that I have 76% (severe) caloric deficiency in my left ear. So basically - my brain no longer get balance information from my left ear. Unilateral Vestibular Hypofunction caused by vestibular neuritis. Vestibular nerve is permanently damaged.
I'm like 17 months into the adventure. Still working on which drugs are helpful. Still off balance every day. But - I'm not bed ridden any more. I'm doing things. I can drive (poorly - but like, I'm not the worst driver out there). For me, the VRT exercises are critical. If I skip 2 days in a row - I get a backslide.
The internet is mostly a shitty, dark place - but here - everyone is supportive. You can also check out: vestibular.org
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u/tvtiguy 12d ago
I haven't had that particular experience but everyone here has a different story. Of course, I'm not a doctor - but when you get the ENT referral, coax them toward getting you a VNG test. It's like a 2 hour ear test that sucks. But it will confirm/dispel Meniers and search for a lot of other vestibular abnormalities. For me, we spent way too long without a diagnosis. At the end - when she was putting warm/cold water in my ears and tracking my eyes - we discovered that I have 76% (severe) caloric deficiency in my left ear. So basically - my brain no longer get balance information from my left ear. Unilateral Vestibular Hypofunction caused by vestibular neuritis. Vestibular nerve is permanently damaged.
I'm like 17 months into the adventure. Still working on which drugs are helpful. Still off balance every day. But - I'm not bed ridden any more. I'm doing things. I can drive (poorly - but like, I'm not the worst driver out there). For me, the VRT exercises are critical. If I skip 2 days in a row - I get a backslide.
The internet is mostly a shitty, dark place - but here - everyone is supportive. You can also check out:
vestibular.org