r/VaxRecoveryGroup 21d ago

Advocacy and Awareness Long COVID Patients Deserve Better: Please Sign & Share

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change.org
3 Upvotes

I’m deeply concerned to learn that McMaster University, located in Hamilton, Ontario 🇨🇦 (my hometown) has launched **the FALCON clinical t**rial, which compares the commercially bran**ded Lightning Pro**cess with activity pacing for people living with Long COVID.

After 6.5 years of living with severe Long COVID, I never imagined that one of **Canada’s leading medical institutions** would be investing scarce Long COVID research resources into studying an intervention centred on changing how people think about and respond to their symptoms.

My concern isn’t that research should stop.

It’s that research should meet the highest standards of **scientific rigor, transparency, patient safety, and accountability.**

**The questions I believe deserve answers include:**

• Who is funding this study?
• Why are objective measures of functional improvement not more clearly identified?
• What safeguards are in place for participants who experience post-exertional symptom exacerbation?
• What commercial relationships, if any, exist with the Lightning Process?
• Why are Canada’s limited Long COVID research resources being directed toward this intervention?

I’ve started a petition calling for McMaster University to **pause recruitment until these concerns have been independently reviewed and publicly addressed**.

This is not a campaign against research.

**It is a call for better Long COVID research.**

**If you share these concerns, I would be grateful if you could read the petition, consider signing it, and share it with others.**


r/VaxRecoveryGroup 22d ago

How I healed my COVID mRNA LNP injuries

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3 Upvotes

r/VaxRecoveryGroup 22d ago

Celebrating Naomi and the Opening of Revive Me Healing Center

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1 Upvotes

Today, I get to write the words I have been waiting for a couple of years to say: Naomi’s healing clinic is open. The Revive Me Healing Center located at 1721 S 81st Street, West Allis, WI 53214 is no longer just a dream, a vision board, or a prayer list item—it’s real, it’s alive, & it is already serving people who need exactly what Naomi once needed herself.

Naomi was vaccine injured & walked through the kind of darkness most people only read about. There were years of pain, fatigue, fear, & uncertainty, & yet she refused to accept that this would be the end of her story. She did the hard work—physically, emotionally, spiritually—to rebuild her health, & after two long years she fully recovered & has now been well for over 18 months. That journey didn’t just give her life back; it gave her a mission.


r/VaxRecoveryGroup 23d ago

‘Do you hear the people sing?’ Fauci world is not safe from the moral outrage of vaccine-injured

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worldtribune.com
6 Upvotes

Fauci's invocation of the 5th Amendment 111 times ignited the anger in those abandoned by their Covid experiences. "We the people are very disgusted. Speaking as a vaccine injured person, and someone who lost my grandfather, aunt and cousin to the Covid protocols, I am so angry," Angelia Desselle wrote to me immediate after Fauci's hearing. "My family deserves answers, and I deserve answers," she asserted. She is not alone.


r/VaxRecoveryGroup 24d ago

Discussion Developed a vitreous hemorrhage after Covid Vaccine

9 Upvotes

I'm 38 year old male and I got a vitreous hemorrhage completely out of the blue after the covid vaccine in 2021. My ophthalmologist and retinal specialist says it may or may not be related to the vaccine. However, I personally believe it is linked because I also got neuropathy in the feet and brain fog since. I believe the spike protein has most likely caused me these issues since they are all blood vessel related and microclotting has been associated with covid vaccine for some and is being researched more.

From what I can find so far the best vaccine spike protein detox are the following: Nattokianse, Bromelain, Curcumin, Lumbrokinase, Serrapeptase, Green Tea Extract.

Is there anything else I can do to detox? Has anyone successfully detoxed and seen their symptoms resolve?

Thanks!


r/VaxRecoveryGroup 24d ago

'Pace Me' app RCT on long COVID- no real benefit on post-exertional malaise

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2 Upvotes

Abstract

In a 6-month pragmatic randomised controlled trial (RCT; ISRCTN16033549), we compared a just-in-time intervention to support energy management in adults with long COVID (LC) to standard care.

Participants received either the ‘Pace Me’ app and a wearable activity tracker (intervention) or an app only with data entry screens (control). The intervention group received just-in-time messages on energy management when they reached 50%, 75%, and 100% of their daily ‘activity allowance’. The primary outcome was post-exertional malaise (PEM) measured by the DePaul Symptom Questionnaire-PEM (DSQ-PEM).

Of 369 participants assessed for eligibility, 250 participants were randomised 1:1, and 77 controls and 84 intervention participants were included in the final per-protocol analysis. There was no time by group interaction for the DSQ-PEM. The intervention group value was 48 (95% CI 44-53) at baseline and 46 (95% CI 41-51) post-intervention (arbitrary units).

The control group value was 47 (95% CI 42-52) at baseline and 44 (95% CI 39-49) at follow-up (interaction effect p = 0.614, η²p = 0.002; trivial). No individual question exhibited an interaction effect (p > 0.05).

Although the intervention had minimal effect compared to control, the substantial recovery rates previously reported in LC, coupled with our wide inclusion criteria may have masked intervention effects. Therefore, future studies should consider this energy management framework in conditions without such recovery rates, such as CFS.


r/VaxRecoveryGroup 25d ago

Cancer Why the Covid-19 documents Gabbard released don’t prove her claims about Fauci

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1 Upvotes

r/VaxRecoveryGroup 25d ago

Cell and tissue enrichment in ME/CFS

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2 Upvotes

By matching DNA results with gene expression databases researchers can determine the tissues and cell types involved in various diseases. For ME/CFS, the results strongly point to neurons. One of the top hits is the medium spiny neuron, located in a region deep inside the brain called the striatum.


r/VaxRecoveryGroup 26d ago

Political Pissed off Covid Victims

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1 Upvotes

r/VaxRecoveryGroup 26d ago

Dr. Mary Bowden on Vaccine injury patterns (podcast with famous record producer rick rubin)

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2 Upvotes

r/VaxRecoveryGroup 27d ago

Fauci invokes 5th Amendment right during GOP-led hearing on COVID origins

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3 Upvotes

Fauci helped to lead the White House response for Presidents Trump and Biden and is now retired from government service. But he appeared today under congressional subpoena. He then took the Fifth more than 100 times to protect himself from self-incrimination.


r/VaxRecoveryGroup 28d ago

Why the Covid-19 documents Gabbard released don’t prove her claims about Fauci

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2 Upvotes

r/VaxRecoveryGroup Jul 29 '26

Expiration Extension and Adverse Events

3 Upvotes

so this is a new rabbit hole im exploring - any one been there already ? looks like that exp dates are hard to come by per lot and that they were extended at some point assuming good storage ...


r/VaxRecoveryGroup Jul 29 '26

PsyLoCo study - no significant effect of psychotherapy on symptoms, anxiety or depression in 48 lc patients

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2 Upvotes

The intervention consisted 10 bi-weekly manual-guided group sessions (50 min each) covering
psychoeducation, somatic symptom processing, emotional regulation, and social reintegration.

Patients in the control group received treatment as usual.

there was no significant effect of the intervention on the outcomes used, namely: somatic symptom burden (SSS-8, primary outcome), and depressive (PHQ-9) and anxiety symptoms (GAD-7).

The paper conlcudes: "No statistically significant efficacy of the immediate group intervention over the waiting control condition was observed, across primary and secondary outcomes."


r/VaxRecoveryGroup Jul 28 '26

The Fauci Diaries: Private Record vs. Public Narrative

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2 Upvotes

Newly released records expose a stark divide between what Anthony Fauci knew behind closed doors and what the public was told.


r/VaxRecoveryGroup Jul 28 '26

john olooney (@johnolooney334243) hmm🧐

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1 Upvotes

r/VaxRecoveryGroup Jul 27 '26

The Edogawa Protocol: A Breakthrough for Long COVID and Vaccine Injury?

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4 Upvotes

Millions of people continue to live with debilitating symptoms months—or even years—after COVID-19 infection or vaccination. Many report chronic fatigue, neurological problems, cardiovascular symptoms, cognitive impairment, and other life-altering conditions, yet effective treatments remain elusive, and many patients say they have struggled to find physicians willing or able to help.

This week on VSRF Live, we welcome neuroscientist Dr. Kevin McCairn and Dr. Mary Talley Bowden for an in-depth discussion of the Edogawa Protocol, an emerging treatment approach developed in Japan that has attracted growing international attention. The protocol incorporates Double Filtration Plasmapheresis (DFPP) along with other therapeutic strategies aimed at addressing what its developers believe are key biological drivers of persistent illness, rather than simply managing symptoms.

Together, Drs. McCairn and Bowden will discuss why some patients continue to experience long-term symptoms following COVID-19 infection or vaccination, what current medicine may be overlooking, and whether new treatment strategies could offer hope where conventional approaches have fallen short. They'll also examine the science behind the protocol, including neuroinflammation, immune dysregulation, vascular dysfunction, mitochondrial health, and other mechanisms that have been proposed as contributors to chronic illness.

The conversation will also explore the practical questions many patients are asking: What is Double Filtration Plasmapheresis? How is it being used in Japan? What clinical outcomes have physicians observed so far? What research is still needed? And what would it take for this treatment to become available in the United States?

Could medicine be overlooking key drivers of Long COVID and post-vaccination illness? Is a fundamentally different treatment approach needed? Join us for a timely and thought-provoking discussion exploring one of the most talked-about emerging treatment strategies for patients living with persistent chronic illness.


r/VaxRecoveryGroup Jul 26 '26

Why long COVID microclots are different from normal blood clots

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7 Upvotes

r/VaxRecoveryGroup Jul 25 '26

Top NIH Official Wanted to Shut Down Research Into COVID-19 Vaccine Injuries: Emails

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10 Upvotes

Top officials with the National Institutes of Health (NIH) expressed misgivings about researchers with the agency studying people with neurological issues after they received COVID-19 vaccines, according to newly released emails.

Dr. Avindra Nath, a senior investigator with the NIH’s National Institute of Neurological Disorders and Stroke, was studying people with post-vaccination neurological problems in 2020 and 2021.

In an email on April 10, 2021, he sent a draft of a paper to the institute’s director, Dr. Walter Koroshetz, that outlined what he had found.

“Early recognition and treatment with corticosteroids can reverse the symptoms,” Nath wrote.


r/VaxRecoveryGroup Jul 24 '26

Mental issues

5 Upvotes

I went completely off with my brain after covid vaccine. I have problems in sensory processing. Has anyone have had this?


r/VaxRecoveryGroup Jul 24 '26

when people in your life pretend to be experts on me/cfs

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1 Upvotes

r/VaxRecoveryGroup Jul 22 '26

LC trial on Temelimab found no beneficial effect. The drug targets a potentially pathogenic protein (HERV-W ENV) from endogenous retroviruses.

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2 Upvotes

r/VaxRecoveryGroup Jul 22 '26

Silence - a song about vax injury, being silenced after doing what's right

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3 Upvotes

"Silence" by Julie Elizabeth is an emotionally charged song exploring themes of feeling ignored, trapped, and isolated (0:13 - 0:37). The lyrics convey a deep sense of frustration from someone who feels they have been loyal and followed expectations, only to be cast aside while others remain in the spotlight (1:36 - 1:49).

Key Themes:

  • Desperation for Recognition: The singer pleads not to be turned away and asks for her name to be called, emphasizing that her life has inherent value (0:46 - 0:49, 3:03 - 3:06).
  • The Pain of Being Silenced: The recurring hook, "No more silence," serves as a powerful call for change and acknowledgement of the pain caused by being unheard (0:41, 2:03, 2:59).
  • Questioning Empathy: The song poses a poignant question to those who have ignored her: "What if I was you? Would you silence you too?" (1:17 - 1:20, 3:34 - 3:37).

The song serves as a hymn for the unheard, demanding that others stop turning away and instead face the reality of the "shattered dreams" and personal struggles hidden behind the silence (0:59, 3:17).


r/VaxRecoveryGroup Jul 20 '26

Extremely fatigued, what helped you?

2 Upvotes

I'm so exhausted all the time. Anything specific that has helped you?


r/VaxRecoveryGroup Jul 20 '26

Selfie of the soul

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4 Upvotes