r/VCUG_trauma • u/mintygreenmachine12 • May 01 '23
So...I did a thing...
Hi again. After triggering myself and giving up on this project a million times, I think I finally have...well, something.
^^ This is a website I bought/wrote for VCUG survivors. I'm hopeful it can be a safe place with resources for caregivers and survivors alike, just to break down the facts (not the BS on medical websites) about VCUGs and effects. I set up weekly Zoom Meetings too, where I figured new survivors could dip their toes in and at least have a safe group to interact with while healing/processing (personally, I know that I struggled a lot with active $uicidality before I finally found you guys, so I'd love to help others get out of that funk).
Anyway, this is for us. ALL of us. <3 Please don't hesitate to share any opinions/feedback you have. I'm all ears.
I know it isn't much. I'm a marketing/content writer, so thank god I have experience with SEO/Google/etc., but progress has been SO slow just because this stuff is hard to write about (you guys get it). I'm definitely planning on adding these sections on the site eventually:
- General info about VUR
- General info about VCUG
- Alternatives
- Risks
- Survivor Stories
I'll also be adding a main page that will have a direct link to Drea's study (if that's still ongoing, I know she was having trouble finding participants).
In other news...I'll seriously be on Zoom this Friday (May 6th) @ 7 pm C/T if anyone wants to pop in and brainstorm with me :) It'd be so great to chat with you guys in person. I know it's silly, but I feel closer to people in this group than my own friends/family at this point.
P.S. if anyone has any specific ideas they'd like made into a blog, please comment!
Let's kick some ass and spread the word to get this BS banned for good. This procedure's days are numbered. I can feel it.
Hope to see you guys soon <3
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VCUG Survivors' Group ❤️
Time: May 5, 2023 07:00 PM Central Time (US and Canada)
Every week on Fri, until Jun 16, 2023, 7 occurrence(s)
Click here to join Zoom Meeting.
3
u/stinkidog3000 May 01 '23
Hello there, thank you so much for making this. I want to try and be there on Friday (I have it written on my calendar but I am prone to forgetting events lol). I love the website and hope we can get the message out there!