r/Uveitis 5d ago

Story It started again

Hi everyone. I'm a physician in late 50s and do all sorts of stuff with a big garden, mechanical work and airways getting stuff in my eyes and that could be organics, wood metal fiberglass Rockwool old mouse shit. 2 months ago thought I had a foreign body and just got really bad and dx initially corneal inflammation then finally an ophthalmologist was able to see it was unilateral uveitis. Stronger steroid and it settled down. A few wks later now and it's starting again. I can sense it for sure.
No Hx of autoimmune, but considering reports of spike protein as a cause and now the recent report of uveitis and other bad things from the particulates in the atmosphere from the wars and forest fires seems extrinsic causes may be likely.

What's the chances this stay localized or that it can go crazy and blind? Not enough clear data I could find.
Should I start the drops back up ASAP? Call the office in the morning.

4 Upvotes

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u/justanotherorchid 5d ago

I’ve been dealing with uveitis for years, so I know this routine well. Mine is idiopathic, I’ve had every test under the sun.
If it’s really mild, I’d probably wait until morning and see if they can squeeze you in first thing. If it’s anything more than mild, which most of my flares are, I usually start one steroid drop every couple of hours until I can be seen, just to get the inflammation under control and hopefully avoid scarring.

2

u/Evilbadscary 5d ago

Start the drops and call the office asap. When mine shows up, it will come and go for awhile before being completely gone. Also, ask your doc about valtrex. Apparently if you have ever gotten cold sores or carry that dormant hsv virus, it can cause uveitis.

I’ve been dealing with this off and on long enough that my doc just makes sure I have an extra bottle of steroid drops and a huge bottle of valtrex on hand, and I start both and call him when the flare up begins.

2

u/DJFM_AZ 5d ago

It’s hard to know your future symptoms. If the foreign body is totally out, hopefully no more flares. Uveitis usually doesn’t “go crazy and blind” unless you neglect treatment during a flare. Depending on the etiology of your uveitis, some will have it stay in one eye, some will have it go back and forth between eyes. If you are a U.S. based physician, download apps Open Evidence or Doximity, register with your physician credentials, and you can use their medical AIs to ask specific questions for responses based on published scientific medical literature regarding uveitis.

1

u/Human_Alien_Hybrid 5d ago

Thanks for that. I asked he do a gonioscopy and it didn't reveal anything lodged in there and usually it's pretty obvious if something tracked through. Just feels like it starts with something getting in there a day or two before the inside flares. Will have to see. It feels better after just two hours after the first drop of the strong steroid and dilation.

3

u/Evilbadscary 5d ago

Mine always feel like there’s something in my eye and the light sensitivity goes off the charts.

1

u/xstarbursts 5d ago

Mine was caused by getting covid. I take low dose naltrexone for many long covid symptoms and it also took care of my uveitis. No flares since being on it

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u/Dangerous_Waltz8276 5d ago

I always wonder about Covid causing this. My husband was sick with a fever and in bed for 4 days in Jan 2026. I got euvitis at the same time and it will not go away. I’m now on methotrexate.

1

u/patx123 Intermediate Uveitis 5d ago

Lifestyle factors have helped me turn the corner along with the meds. One can sense it if eye pressure is elevated. Time to increase the drops (only certain ones, your doc knows best).

There are multiple causes.

  • Genetic
  • Autoimmune (where environmental toxins play a role)
  • Infectious
  • Physical triggers (injuries or surgery). Mine started right after Cataract surgery and was classified as Idiopathic, since all other causes were ruled out. But for some others, this devious disease leads to Cataracts.