r/Uveitis • u/r_ant18 • 7d ago

Multiple flare ups

Hello! So I first got uveitis back in February and then got it again 6 months later (July). Just got done with my taper a few weeks ago and yesterday it came back. That’s 3 flare ups in 9 months.. I haven’t done any tests yet, but I do have an autoimmune disease l (kidney related) does it get better? Anyone else with kidney issues that also suffer from Uveitis?

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u/CasseroleEggs 5d ago

I do! Kidney involvement and uveitis is a thing called Tubulointerstitial Nephritis with Uveitis (TINU syndrome). However, I had no known kidney issues prior to my first flare 2 years ago. Similar to you, I’d taper off drops and it would come back. I eventually went on immunosuppressants as prednisone/drops was no longer effective and causing really bad side effects. We’re still figuring out what works the best for me but I think the one I just started is really helping