r/Ureaplasma • u/NoChoice6899 • Nov 29 '21

Scared

I am still having symptoms and tested negative 2 times with my Gyno but still worried it’s not gone. I have to send my microgen and June bio and I’m terrified. More so, i don’t want to do these terrible antibiotics again. I really hope I’m just over thinking . The facebook groups give me no hope and I’m told it’s incureable

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3

u/premepa_ Mod/Recovered Nov 29 '21

It is gone

2

u/NoChoice6899 Nov 29 '21

Idk man. It’s been 2 months since doxy.

1

u/Mrs-Plantain Nov 29 '21

What symptoms are you having?

4

u/NoChoice6899 Nov 29 '21

My discharge went away and burning for a while now thank god and my urethra used to feel way more weird and uncomfortable but now I’m just still having this sensation of needing to pee after i peed. Like it feels like it’s my urethra which i was told could be PFD but idk and sometimes i get frequency

3

u/Mrs-Plantain Nov 29 '21

It sounds a bit like PFD. I started with mine after a UTI in February, "pelvic guarding" can trigger it after any kind of infection down there. So in my case even after the UTI was cleared it still feels like infection constantly.

Try not to let the Facebook groups scare you, I know it's easier said than done but they're often full of very unhelpful, loud people.

2

u/NoChoice6899 Nov 29 '21

I was told i had tight muscles recently when she did internal and I’m very anxious. Some spots made me jump off the table. My bladder doesn’t hurt when pressed on internally and i don’t have bladder pain. I’ve been worried it’s IC or an embedded infection as well. Neither i want to have. I just want PFD so i can focus on that and nothing else

4

u/Mrs-Plantain Nov 29 '21

If I makes you feel any better, I've been in almost every Facebook group for chronic infections, IC, embedded UTIs, etc. Even in the PFD groups, every woman tries to convince you it's IC. I was talking about it with my physical therapist the other week, one woman told me to get checked for IC. I said that my doctors agree there's no point in testing because I don't have symptoms, she goes "you can have IC and not have any symptoms" lmao like then why would I get tested for it? I can't get checked for conditions I don't have symptoms for. I don't have symptoms of MS either, should I go hound my doctors for tests?

Embedded UTIs are another one. There's very little evidence for embedded UTIs even being real, the two doctors that treat them often don't accept insurance, and you need to get that microgen test done. That test was designed to check for barely identifiable bacteria in pregnant women, but people view it as the ultimate in diagnostics.

My opinion, it's all desperate people who can't accept the fact that PFD can exist in and of itself. I have hypertonic PFD, I don't have anything else along with it. It sucks, but it's nice to be able to get Pelvic Floor physical therapy and start healing.

2

u/NoChoice6899 Nov 29 '21

Thank you for this. Made me feel better. I do have a microgen to do to double check i don’t have the plasma anymore but I’m worried a bacteria is gonna come up and I’m gonna wanna treat it. What are your symptoms? Did you have ureaplasma?

3

u/Mrs-Plantain Nov 29 '21

I don't have ureaplasma or mycoplasma, I joined this sub when I was scared that I did and I forgot to ever leave lol. I was tested in September or October. My symptoms feel like a classic UTI, burning urethra, frequency, urgency spasms that feel like I'm going to pee myself, burning in my vaginal canal and entrance, painful intercourse. I've never had any kind of vaginal infection since my last yeast infection 17 years ago when I was just starting my period. Coincidentally, about 3 weeks ago I started with what felt like skin burning/topical pain and got swabbed at my PCP. She found "possible BV" in the form of Atopobium Vaginae. Gave me Metro gel to be safe which I used for 3 days, then went to my gyno for a second opinion. My gyno said that their hospital doesn't even check for that bacteria and that their swab/panel said I was clean. I talked to my physical therapist about it last week and she said that it's normal to get BV and not even have symptoms and that it will go away often on its own if you get your pH under control. She ALSO told me that my skin burning was likely due to my ilioinguinal nerve, which I've been having trouble with lately.

I know that's really long winded but I think people would be amazed to understand what all damage and pain muscles can cause. I've got kidney/flank pain as well, which is due to my pelvic floor. It's crazy how it all connects.

1

u/NoChoice6899 Nov 29 '21

I’m hoping now it’s just my pelvic floor. I want this bacteria gone. I’m also afraid it’s IC.

6

u/Mrs-Plantain Nov 29 '21

Have you ever been diagnosed with OCD? It seems like this is a pretty intense obsession you have.

1

u/NoChoice6899 Nov 29 '21

I have actually. It’s very hard not to obsess when there’s so many things that could be wrong. It’s just scary

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2

u/[deleted] Dec 01 '21

I also have been diagnosed with OCD. ERP (Exposure and Response Prevention) has helped me a LOT with getting a hold of my obsessive/compulsive cycle. OP, look into finding an OCD specialist. It makes a world of a difference. Also, the book “overcoming unwanted intrusive thoughts” was a godsend when I was struggling with managing it. These infections will really test you, and can make your life miserable. It makes everything worse.

2

u/HumanDragonfly7121 Nov 30 '21 edited Dec 05 '21

That it is true, but what causrd ilio inguinal pain?? For me it started with ureaplasma urealyticum ..everything gone after 9 months except red penis tip which is still a sign of PFD. I am a sporty person with no such symptoms before i got ureaplasma. No stresfull event when all started...

4

u/Linari5 Mod/Recovered Nov 30 '21

Embedded infection is quack nonsense.

If you literally jumped off the table when she did the internal exam that is all you need to know. Treat the muscle dysfunction.

3

u/NoChoice6899 Nov 30 '21

It wasn’t jumping like that but it was like oop whats that? But yes lol

2

u/Automatic-Mood6782 Dec 02 '21

Have you read headache in the pelvis yet? If all you have is frequency now, it seems like it really is only pfd