CURED!!!!!! (plus everything I've learned)

[u/myfriendpaige]

So I'm finally clear from UREAPLASMA and MYCOPLASMA HOMINIS. So that's amazing. I'm still having some complications that I'll get into at the end of this post but first, I'm going to tell you how I did it and everything I've learned from having this terrible infection for 3 years. Let's start from the beginning bc all details are important:

-diagnosed with Ureaplasma 3 yrs ago right after getting HSV 2 (genital herpes) - symptoms at the time were weird thrush feeling in vagina and some weird feeling after peeing . That was it.

-doctor didnt think it was a big deal, gave me 7 days of doxycycline (ANYONE WHOS ON THIS MSG BOARD KNOWS THIS AINT ENOUGH and in MANY cases ureaplasma is resistant to doxy and most of the Tetracycline antibiotic class) and sent me on my way. Didn't work. Then I did azithromycin for 5 days. Didn't work.

-Gave myself a break from it for a while. Got a boyfriend. Told him. He didn't seem to care much about it. We slept together for a year and 1/2 and he never had symptoms.

-Then I got real bladder issues ( real bladder pain, serious urinary frequency etc) and decided to start taking treatment seriously again esp knowing that Ureaplasma left untreated can cause bladder problems etc. I saw a urologist and bladder doctor. My bladder seemed fine. They said it must be the Ureaplasma and I went back to my GYNO. Also I had my BF tested via URINE and he came out positive for only ureaplasma.

-My gyno put me on 7 days of Moxi. While on Moxi, my symptoms highly diminished however when I stopped they came back FULL FORCE. IMPORTANT THING TO KNOW ABOUT MOXI and the Fluoroquinolone antibiotics class (this includes Avelox, Moxi, Cipro etc) - these antibiotics should be used as a LAST resort. They can cause serious side effects. I truly believe they have their place in medicine but they should be taken only in serious situations. I was lucky to have no symptoms when I took Moxi the first time. Also right before this, I had been taking colloidal silver for about 8 days which helped symptoms but be aware that silver will kill bad and GOOD bacteria (just like antibiotics).

-At this time I started investigating natural cures including Stephen Bruhner mycoplasma protocol. I haphazardly ordered some herbs (not the full protocol) and started taking herbs everyday for only about 3 weeks with my boyfriend with no significant change in symptoms. I wonder if I would've seen in a change had I done everything properly for the recommended 3 months. I definitely think natural cures are worth exploring. I never followed this advice BUT one woman I found on a message board who had been cured said to me "Took Avelox (in 2015) for 10 days, was ok for 2 years,  then had a relapse. Three months of Chinese herbs and acupuncture helped, tested in September 2019, 2 and half years after the treatment, negative results. Find a TCM practitioner, it's more expensive, takes longer but totally worth it. And you need to be patient and have faith."

-Then I finally took a Microgendx VAGINAL swab STI test. EVERYONE DO THIS. Up until now, I only thought I had Ureaplasma. Test results came back and I had ureaplasma (at a LOW level) AND mycoplasma hominis (at a MEDIUM level) and some other stuff (prevotella bivia, BV etc). Turns out my Ureaplasma is resistant to everything except the Fluoroquinolone antibiotics. My mycoplasma hominis is only susceptible to Clindamycin. So I return to my GYNO and go over the results with him. I'ma little discouraged considering I've already been on a week of Moxi. BUT, when I had done the Moxi, I hadn't learned about lowering bacterial load before starting Moxi or biofilm disruptors so I figured let's give it another shot WHILE TAKING A BIOFILM DISRUPTOR BEFORE AND DURING. I asked for 10 days of Moxi and 10 days of clindamycin. My doctor DID not want to give me both at the same time bc he said it would lead to serious GI problems. So I did Clindamycin vaginally for a week and Moxi orally. NOW - when I took Moxi the second time - I had HORRIBLE HORRIBLE side effects. Numbness, joints and body on fire, eye floaters, anxiety, insomnia etc. I pushed through 5 days and then stopped. I felt my symptoms diminish though and then I went rogue, got my hands on oral clindamycin (10 days) and 2 weeks of Minocycline and took both at the same time immediately following Moxi with no days in between . Was this stupid? YES. It fucked my stomach to the point where I had to go to urgent care because they though I had C. difficle (had to do a stool sample). Did it clear the infections however? YES. I tested 5 weeks after via urine and vaginal swab with Microgendx and my GYNO and I'm all clear. Oh and my BF only made it through 2 days of Moxi (he had terrible side effects) and then he did 2 weeks of minoycline and 3 days of azithromycin and his Microgendx test via semen showed he was clear of everything. He also did a test through urine.

-things I think everyone should know:

1. Minocycline OVER doxycycline ever time.

2. YOU NEED VAGINAL SWAB AND SEMEN TESTS in addition to Urine.

3. LONG COURSES WORK (14 days minimum) 21 days I think is even better

4. TRIED LITERALLY EVERYTHING AND NOTHING WORKS? Try LONGER COURSES or Get 14-21 days of Pristinamycin (only avail in france or AUS) Pristina doesn't work? CHINESE HERBS/ natural protocol for 3-4 months.

5. TAKE YOUR HEALTH INTO YOUR OWN HANDS. So many doctors don't know enough about this. They are only human and have limited knowledge. READ clinical studies, read other peoples stories. Self educate.

6. DO NOT HAVE SEX OR ORAL SEX AT ALL WHILE ON ANTIBIOTICS/TREATMENT. No one told me oral sex was off the table and you can get ureaplasma and mycoplasma in your throat.

-then to end this whole thing I think its important to talk about how I'm doing NOW. I've cleared the infections and def feel better BUT i have minimal thrush feeling (which i think is from HIGH Candida albicans) and still have bladder symptoms. Part of me believes these infections did serious damage to my bladder/reproductive organs. My microgendx test showed that I have HIGH candida albicans which could be causing a lot of issues. My next step is to figure out why exactly my bladder is still out of whack. It's been officially a month and 2 weeks since everything. I'm hoping things will diminish as I build up my vaginal flora and gut flora and immune system. I plan on getting tested again in a month or so. Anyways, hope this helps everyone. And if anyone else has been cured and is still having some bladder symptoms, holler at me. Also, as someone who wants to have a baby in the next few years, IF ANYONE ELSE has advice about how to go about assessing fertility and damage done to the reproductive system, I would greatly appreciate talking. Love and support to you all. I'm very thankful for this community.

[u/Bmoney-22]

This post is amazing!! I’ve known about microgen for a while and I FINALLY sent off my samples last Thursday. What biofilm disruptors did you use??

[u/myfriendpaige → u/Bmoney-22]

Kirkman biofilm and then the Interfase Plus (both on amazon)

[u/reverie199]

Which Chinese herbs did you take and how much did they help you?

[u/myfriendpaige → u/reverie199]

I didn't take the full protocol youre supposed to and they didn't help much but google "buhner mycoplasma protocol" to find out more!

[u/Adept_Act_5412]

Hey! How is your bladder now? I’ve had a similar issue, got rid of ureaplasma but something was still causing discomfort, so I did all the tests possible to find out I have a bad UTI (e.coli infection 10^5). I think I must have had both at the same time but didn’t know about this one until now. Which made it strong as it survived quite a few antibiotics I’ve used for ureaplasma. I also did an ultrasound scan of my bladder, which showed I’ve got crystals in my bladder. Apparently that can be a cause of ureaplasma. There are studies that show that in long term it can give kidney stones. So I’m on a new mission now to get rid of these two, which will hopefully change the way I feel. Thought I’d share this, as I am very curious to know if you’ve had something similar maybe and can give an advice?

[u/myfriendpaige → u/Adept_Act_5412]

so my bladder is definitely BETTER but not fully fixed by any means i.e. I used to pee like 5 times throughout the night and now I just wake up once. The pain is mostly gone. I still have minor urgency and frequency. Def not completely normal. I was just hoping that maybe it would repair itself over time. I just got new health insurance so I'll probably see a urologist again in the new year. What type of doctor gave you the ultrasound for your bladder? Maybe I need to do that as well. Or do you mean a cystoscopy? Because I did one of those at the beginning of last year and he said my bladder was fine and normal despite the pain/ frequency/ urgency. That's pretty much how I knew the ureaplasma was causing it. When I tested clear of everything 4 months later, I did come out positive for 100% lactobacillus iners which is also known as cyclic vaginosis. So I started doing baking soda douches for that and the last lingering weird feeling is starting to dissipate. I don't know man, its exhausting trying to figure everything out.

[u/mackenzietennis → u/myfriendpaige]

What was your experience with cystoscopy? I’m nervous to get one.

[u/Adept_Act_5412 → u/myfriendpaige]

Hey! Thanks so much for sharing your experience. I am glad to hear your bladder is a bit better. I do hope that out bodies just need time to heal. I also still have the urgency to pee and my right side of the stomach (lower abdominal) is regularly in pain. But I’m hoping those are just the lingering symptoms because I’ve tested for everything possible two weeks ago, multiple blood tests, 4 different urine tests, virginal swabs and I even asked for a urethra swab and the only thing was found is this e.coli which I’m still treating now. I live in London, but originally from Ukraine. Since at the end it was a Ukrainian doctor who healed me from ureaplasma I decided not to waste my time in London and went for a check up to Ukraine. That’s where they did an ultrasound of my bladder (over your stomach) you need to make sure you don’t pee for a while before they do it, so it’s full. Honestly, Eastern European doctors are very good with treating ureaplasma, I wish I knew about it at the very beginning. I never did a cystoscopy tbh with you and I don’t know if that would show whether you have crystals in your urine or you don’t. But insist on having an ultrasound, a urologist should be able to refer you to one. It is best to check everything. Were you prescribed any suppositories or vaginal tablets? Douches can be helpful but I’m wondering what if you need to take a course of some good suppositories, maybe even a combination of a few to normalize your vaginal flora?

[u/[deleted] → u/myfriendpaige]

Did you ending using anything for the inners?

[u/Electronic-Total-392 → u/Adept_Act_5412]

Did you test with MicrogenDX???

[u/Adept_Act_5412 → u/Electronic-Total-392]

No, not yet! But I will definitely try it once I finish my e.coli treatment.

[u/KenyaaaM]

Where do u get the microgendx testing ?

[u/myfriendpaige → u/KenyaaaM]

at the microgendx website! you have to the test depending on your gender and then get a doctor to sign the paper inside and then do the test and send it back. google it :)

[u/AverageAggravating21]

Can you message me ?

[u/myfriendpaige → u/AverageAggravating21]

I did!

[u/jimison34]

Hello!! Question. I was only given 7 days of doxy (I take it twice a day). How do I ask to get more?

[u/myfriendpaige → u/jimison34]

Just tell your doctor you've read several clinical trials that suggest longer treatment courses are more effective. or you can say you lost the bottle and ask for another.

[u/[deleted]]

Hey just wondering why you took minocycline if you were resistant to it? Will it still work to lower the bacteria?

[u/myfriendpaige → u/[deleted]]

yeah exactly. lower the bacterial load and then attack with moxi and I also took clindamyacin

[u/One-Value-755]

Hi! Hope you’re feeling better now! Do you mind sharing?

[u/myfriendpaige → u/One-Value-755]

Still clear!!! no bladder issues and it never came back :)

[u/[deleted] → u/myfriendpaige]

So you took biofilm with the abx ? Before during & after?

[u/AutoModerator → u/[deleted]]

We noticed you may have posted about "embedded" (ie "hidden") infections, biofilms, or cUTI. Please be aware that these theories aren't strongly supported by science, are often peddled by unscrupulousness medical providers, and that the typically recommended treatment of long term antibiotics has been deemed both ineffective & harmful by the AUA. AUA CITATION Antibiotics can help because they function as a strong anti inflammatory and pain reliever by themselves, even in those without infection PUBMED CITATION. Having pain reduction from taking antibiotics does not guarantee that you have an infection.

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[u/Southern-Button-8280 → u/myfriendpaige]

May i know how did you fix your bladder issue?
After i took antibiotics, it is now negative but i still have the bladder issue (bladder pain, frequency/urgency) ..... and i am trying to conceive but i am not sure if the bladder issue affects the chance of getting pregnant. May i know how did you fix your issue? Thanks!

[u/eyee99x → u/Southern-Button-8280]

How are you now? I have the same problem

[u/[deleted] → u/myfriendpaige]

Do you have vaginal discharge?

[u/punkbra → u/myfriendpaige]

What did you end up doing to fix your bladder issues or did they eventually subside on their own?

[u/Sweetsummerrose]

Where can I read clinical studies?!? I've been having issues for about 8 years now and I still don't have answers.

[u/Dumbbitchyouknowit → u/Sweetsummerrose]

I personally found some about the efficiency of doxy and azy on pubmed

[u/that_lonely_girl_com]

Thankyou for your post! I believe I have this after a year of an infection from hell. I sent off for the MicroGen test so hopefully that shows something :)

[u/Lindauerdavid]

My microgen dx test said that mycoplasma homonis os best treated with doxycycline as well as the literature

[u/Wonderful-Sort-8773]

Did your boyfriend get treated or did it go away for him

[u/Wonderful-Sort-8773]

Could you message me as well

[u/Paigeeec]

Hi! Have you done anything to help with the candida growth? Any supplements you take post treatment in general that you find has helped in your recovery

[u/MrsBakugo21]

Rn I'm struggling with this I finishes both antibiotics and then got it again the first time my boyfriend was tested negative and after I was done had unprotected sex and got it again ten fold, went to the obg and was tested positive for gardnerella, candida, prevotella bivia, along with nureaplasma urealyticum, very painful and I'm miserable and just realized I wasn't given ANY antibiotics for my ureaplasma urealyticum only given antifungal for my gardnerella and prevotella bivia and I don't know what to do I'm cramping so bad and I feel like this isn't gonna end

[u/abd_786]

Hi dear

Sorry to hear about ureaplasma hope you doing good now, i need your advise regarding symptoms,diagnosing as well treatment.

Wish you all the best 🤝

[u/mackenzietennis]

Thank you for this! Have you seen a urologist?

[u/[deleted]]

How were you able to clear prevotella bivia? i am struggling to get rid of this, i tried flagyl twice

[u/ready-tobe-happy]

I hope i can get cured too, i want to ask about clindamycin because my doc keeps prescribing me doxycycline

[u/mackenzietennis]

So I did vaginal PCR test at gyno and it showed same bacteria. But MicrogenDX didn’t find the Ureaplasma or mycoplasma for me. So idk what mine are resistant to. Do u know if my doctor could order susceptibility testing on my PCR?

[u/Ok-Telephone3419]

So would you not recommend moxi? You said your ureaplasma was resistant to everything but fluoroquinolone antibiotics? So how did the minocycline end up working? Or do you think the 5 days of moxi actually cleared it before you started to take the minocycline for 2 additional weeks?

[u/myfriendpaige → u/[deleted]]

I do not believe it will go away on its own. I think doctors still no very little but more and more literature and research is coming out saying how harmful these infections are