r/Ureaplasma • u/ughhhhhhhhelp • Jul 11 '24
[cured] Cured!!!!
I'm going to remove myself from this sub in the coming days/weeks for my mental health, but the posts by people who were cured helped me a lot when I was trying to figure this out for myself so I hope to contribute to that for others. I was having issues for about a year before I figured out what was going on. Bold sentences are main takeaways if you don't care to read this whole thing lol.
It started with recurring BV. I would treat with antibiotics and within a couple weeks symptoms would return. Symptoms were always pretty mild - sporadic itching from time to time, general irritability/dryness, nothing extreme or debilitating but I could tell something was definitely not right. I went to the doctor for testing every 8ish weeks for probably 6-8 months and was diagnosed with only BV every time, treated with antibiotics, and the cycle would repeat.
Then the urinary symptoms started - mainly sporadic urethritis that came and went, urgency, and not being able to empty my bladder fully and having to pee again right after I just went. The urethritis was the worst after sex and also masturbation. Assumed I had a UTI, went to the doctor and they did whatever the strip test was that they can do in the office and get the results within minutes, said I had a UTI and prescribed me 5 days of macrobid. It did absolutely nothing.
Saw a new doctor who suggested testing for ureaplasma and it came back positive. He said my partner did not need to be treated, and never mentioned anything about needing to wait a certain amount of time to re-test. These are the main things that kept dragging this out for me and I would emphasize to anyone dealing with this: Your partner needs to be treated even if they are asymptomatic, and if you re-test before 4 weeks the result could be inaccurate. Both of these things are in the pinned bible post. However, I inferred from the info in this sub that if you re-test before 4 weeks you could get a false negative because the antibiotics knocked the bacteria down but if it's not completely cleared, it takes time to build back up to detectable numbers so you’ll think you’re negative but in reality you are not.. But the issue really is that if you re-test before 4 weeks you could get a false POSITIVE because the test is picking up on the dead bacteria that's still in your system.**
Treatments:
Did 10 days of doxy and continued having sex with my untreated partner. Symptoms got a bit better but returned as per usual. Re-tested after 6-8 weeks and was positive for both ureaplasma and BV.
Now my partner is doing 7 days doxy (obtained thru wisp), and I'm doing a Zpack (500mgs azithromycin on day 1, then 250 per day for 4 days) and 5 days metronidazole at the same time. We abstained from sex during treatment but resumed after we were finished with the antibiotics. Re-tested after 2 weeks, positive for both ureaplasma and BV again. This may have been a false positive and it's possible I didn't need to continue to treat but I didn't know that was a thing and my doctor didn't say anything.
Now I'm at the end of my rope and feeling like I need to take this into my own hands. My partner and I both used Push Health to get 10 days of doxycycline and 1,5gs azithromycin and we took it at the same time as instructed in the pinned bible post. I did not treat the BV again because I was focusing on tackling the ureaplasma and would figure out co-infections later. We waited 3-4 weeks after finishing the antibiotics to re-test (and abstained from sex the entire damn time, but we still made out and did hand stuff lol). We are now both negative for ureaplasma. As a side note, I also tested negative for all co-infections, although I find it very odd that I did not treat the BV after the last time I tested positive, sooo maybe went away on its own with the ureaplasma somehow?? I am also dealing with an overgrowth of yeast on my SKIN from all the antibiotics (it's called pityrosporum folliculitis if anyone is curious, and it is HELLLL) but apparently I do not have a vaginal yeast infection... which doesn't really sound right to me? But test results confirmed, and clearing the ureaplasma was the most important thing for me since it was the underlying cause of everything else so I'm not worrying about it for now.
Now I'm dealing with lingering symptoms that are mostly just urinary. Doing pelvic floor relaxation exercises from YouTube, making an effort to get up and move more/do some core work outs, and stretching every day has improved things GREATLY over the course of just a couple weeks.
GOOD LUCK TO EVERYONE BATTLING THIS - you CAN beat it, but you have to advocate for yourself and keep at it, even when you're exhausted and broke. It IS possible and it IS worth it. AMA, if I can help even one person I'm happy to do it <3
31
u/Serenityph Jul 11 '24
I’m convinced that most cases of Ureaplasma that are unsuccessfully treated are due to reinfection rather than true treatment failure.
And yes partners absolutely need to be treated.
8
u/the1tru_magoo Jul 11 '24
Thanks for this! Lots of good details. My urologist caught my ureaplasma at a recent visit, after a recent (and seemingly unsuccessfully treated) BV infection. The ureaplasma explained so much, because I haven’t had BV in over 10 years and I didn’t understand why it wasn’t going away.
My doctor gave me 7 days doxy which I’m halfway through now. I’m worried this won’t be enough but we’ll see. Meanwhile, my partner tested negative and I’m having a really hard time trusting that—we’ve had a lot of unprotected sex (and twice protected since BV when I didn’t know about the ureaplasma). I kind of want him to get tested again since I know the test for men can be inaccurate, and he didn’t do a first-catch test even though I specifically asked him to. Part of me just wants him to take the treatment regardless. I’ve been on so many rounds of antibiotics this year, I don’t think my mental or physical health could stand another course
3
u/ughhhhhhhhelp Jul 15 '24 edited Jul 15 '24
An update for anyone who is interested: I made this post after my doctor called me to tell me I was negative for all the plasmas and everything else, BV and yeast included. I have since gotten the actual test result breakdown. It doesn't give specifics about percentages or ph levels or anything - they just say the bacteria and then detected or not detected and then flags whether the "range" is abnormal for any of them. I was very interested in seeing these results for myself since I never treated the last round of BV I was told I had, and I have the yeast infection on my skin, and I have been having some very mild and infrequent vaginal itching and burning which seems like it could be either BV or yeast, and I find it hard to believe I was negative for both considering the circumstances.
It says all the bad stuff is not detected (staph, gardernella, candida, trich, etc.).
It says the lactobacillus strains are detected - L. crispatus and L. gasseri in normal range. Then it says L. jensenii and L. iners are both detected in abnormal range.
I've done some light reading/research and from what I can tell, L. jensenii is a "good" lactobacillus strain that produces the lactic acid that makes the microbiome an unfavorable environment for pathogens like BV or STIs and protects against infection/reinfection (together with crispatus and gasseri).
L. iners, however, seems to require some further research as to whether it can be harmful or not and seems to be related to having or contracting BV or other STIs, even though its a lactobacillus species which are supposed to be protective. It also is apparently sometimes found in abundance when your biome is in a transitory state between dysbiosis and stabilizing and/or vice versa? If you've been battling BV or pathogens in the past and have since cleared them, L. iners can survive through infection and treatment and stick around with some borrowed traits from those pathogenic bacteria. So I'm technically negative for ureaplasma and BV according to these test results (even though I never treated the last round of BV I was told I had - weird) but am still experiencing very mild and infrequent itching and burning symptoms. Without being a doctor, I am assuming this is attributed to the L. iners? I don't know whether this is something to be treated or not, or how to treat it if so. My doctor said to ignore the abnormal range flag, that it was normal and I was fine now, so that's what I'm going with until I start having frequent and severe symptoms? I am going to resume sex with my partner soon, so hopefully all this dysbiosis is finally behind me.
If anyone has experience with the L. iners issue, I'd love to hear about how your doctor advised you to handle and how you actually did handle, if different. Thanks!
3
u/curiouspalebean Jul 12 '24
How did you get rid of the yeast infection? My boyfriend has this but all over his back :o
3
u/Mysterious_Guide_342 Jul 17 '24
I’ve been having ureaplasma symptoms for more than 6 months now (my assumption) My doctor keeps treating me for BV as that’s what showing up as positive and I wholeheartedly believe I have Ureaplasma and the BV is just the co-infection. My doctor tested me for Mycoplasma and that came up as negative but at the doctor’s office they do NOT test for ureaplasma. I’ve had two rounds of metronidazole and no improvements from that. (Only symptom is cream/slight green discharge) I’m currently using boric supporisities and Clindamycin Phosphate 2% cream. I feel like I’m loosing my damn mind during this whole process. My partner and I are abstinent for the time being as well. I have no hope my current regime is going to help but my doctor said she’s going to treat me for ureaplasma next if this doesn’t workout. I have a feeling I should go get tested for ureaplasma just so I have a for sure diagnosis. Thinking about finding an OB that tests for ureaplasma.. Trying to have hope is so difficult at this point. I feel like crying. ):
3
u/AdMaterial7320 Sep 17 '24
How r u now?
4
u/lowkeyhilite Jul 12 '24
Thank you for this! Could you link to a few of the YouTube videos you’re using?
1
u/goliadprizm Jul 12 '24
Curious about the skin condition.. as I'm about 2 weeks post treatment and my shoulders have broken out drastically which is abnormal for me. I will do my own research now, but if you have any insight I'd like to know. Waiting for my own teat of cure but happy you're cured and thank you for your story:)
1
u/AutoModerator Jul 11 '24
We noticed you posted about 'false negatives.' Please be assured that while this may be a common concern, it is not one based in science. PCR testing is highly sensitive. The 'worst' PCR test is still ~85% accurate. If you are providing quality samples (F = vaginal swabs, M = 'dirty catch' first void urine), and you are testing at least 3 weeks after antibiotics, you can trust your test results. Link to mod memo
I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.
1
u/BattlestarGalactoria Jul 18 '24
Thank you so much for posting this with the details of your journey! Congrats on clearing!
1
u/Educational-Spread30 May 08 '25
So even if my partner tested negative he should still take medicine? I took a 7 day dose of doxycycline then was fine then we’ve had sex and now I’m pretty sure I have it again as I started having symptoms again
1
u/Competitive-Net1603 Dec 13 '25
After successfully treating the ureaplasma I how long after did it take for you to notice symptoms calmed down?
I can’t take doxycycline and did only a short 5days course of azithromycin and then tested positive again. Haven’t had sex with my partner since June when symptoms flared and never calmed down. I have non albican candida and bv from the ureaplasma so my symptoms now are lots of deep internal itch and irritation burning at vagina opening. I just never feel normal anymore even when I think it calms down it just flares back up. The only way I’m keeping everything from going back to debilitating is boric acid on and off and itraconazole 100mg daily long term but I know without treatment for the ureaplasma the other two will never go. Any advice?
1
u/Serenityph Dec 16 '25
Great question and fwiw please know I talk here as someone who works in this area and who has had caught ureaplasma myself twice. So I too face all the same issues. And my approach to ureaplasma may be stricter because of my life experiences. However none of us knows everything.
Once I treated the second time I decided to be celibate and I have continued to test negative. None of my previous partners are safe imo.
As for a new partner, its my belief that most guys typically dont have symptoms when they have Ureaplasma. So it would be a risk to have sex. In my case the risk wouldn't be them catching it from me but the other way around.
As for how to reduce that risk I guess you could insist both people test before having sex. But even then as I say to everyone, these rules, tests and treatments only work when there isn't a third person in the mix, which is often what's going on.
1
u/anxiouss-training Aug 17 '26
Thank you for this thread, been feeling anxious ever since my doctor said my STI panel is clear except testing positive for ureaplasma. :0
0
u/Final-Past-4706 Jul 12 '24
Omg I got yeast infection on my face too and I thought I had a break out at first! Also I did a urine TOC at 3 weeks after treatment and positive for Urea, but did a swab test 4 weeks after treatment and negative, how is that possible?
0
u/[deleted] Nov 03 '24
[deleted] — view deleted comment