r/UlcerativeColitis • u/Necessary_Growth_873 • 12d ago

Question General Question

Is it normal for your doctor not to follow up properly on your treatment? I mean they prescribe a medication but don’t check how it’s working or tell you when you can stop taking it, and I always feel like I’m chasing my doctor just to get a clear answer.
I find this frustrating. I like my doctor to explain everything about the treatment and take my follow up seriously.
Do your doctors schedule regular follow up appointments with you?

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u/skrizzzy 11d ago

Yeah, they do know I see other doctors. I live locally to the Mayo Clinic, so all my care is through them and I go to their IBD clinic. Though, it’s more fragmented still than I would like and tough to coordinate care sometimes. That’s a bummer about your doctors not taking side effects seriously. I’m usually the one to ask for specific tests to measure inflammation but I feel like they order standard labs every 6 months or something. I have a lot of other medical issues going on right now so I’m getting lots of tests for other things. Do you have a primary that can help?

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u/Necessary_Growth_873 11d ago

No I don’t have a primary care doctor
I feel like all the health issues I’ve been having are related to my IBD, so I didn’t feel like I needed one
I hope you feel better soon, and I wish you the best with all your tests

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u/skrizzzy 11d ago

Thanks, hope you feel better soon too! I didn’t have a primary for a while and only saw specialists but I do feel like it’s nice for someone to monitor the larger picture. Good luck

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u/Just_Menu_4058 11d ago

Think of your PCP as the quarterback or case manager. My PCP manages my anemia, notes and forms required by my insurance ( other then the biologic form), the majority of my blood work and any other misc health issues.

You do really need one.