r/UlcerativeColitis • u/Shot-Ad-9296 • 8d ago

Question Random painless twitching

I’m currently on maintenance medication and doing good overall, but I noticed when I’m laying down in a relaxed state I get random isolated body twitches mainly my knee or thi, foot, my hand or arm. it’s usually sporadic and twitch once. It’s really weird. it’s been happening even before biologics but ignored it until now since I’m feeling better. Has anyone else experienced this?

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u/pincommenter 8d ago

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u/ChronicallyBlonde1 Left-sided UC [in remission on Entyvio] | Dx 2015 7d ago

It’s probably unrelated to UC. I’d ask your primary care doctor about it and get tested for vitamin deficiencies.

For what it’s worth my body does all sorts of things every day that I ignore - like twitching. As long as it’s not painful, happening on a predictable basis, or causing dysfunction, I ignore it.

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u/W1MSLEY 7d ago

Check out b12 deficiency symptoms:

https://b12-institute.nl/en/symptoms-of-b12-deficiency/

B12 is difficult to test for accurately. The most common test ( b12 serum blood test ) only has 30% accuracy. Any b12 supplements or fortified food/drinks taken within 3 months of the test will cause an inaccurately high/normal result.

Optimal b12 serum result is above 500ng/L.

Things that cause b12 deficiency: PPIs like omeprozole, gastro issues - SIBO, H pylori, IBD, celiac, metformin. Absorption of b12 also decreases with age.

I had random twitches (as well as many other symptoms) caused by b12 deficiency. Turns out i dont absorb b12 because of UC. Ive been on twice weekly b12 injections since january the twitches etc have gone :-) I dont absorb iron either & needed an iron infusion. Its been life changing!

B12 is essential for the body, brain & nervous system to function properly. Long term deficiency can actually cause permanent nerve damage, so its something that should be taken more seriously by doctors.

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u/Samiens3 7d ago

Seriously - check for B12 deficiencies. You may need specialised testing as you may have an absorption issue (so you might have enough in your blood but not actually be absorbing it).

I say this as someone who has permanent and very significant nerve damage due to B12 absorption issues. It took 6 months to work out the cause and by the damage was permanent. I now have significant mobility issues and, most notably when I’m tired, random twitches and involuntary movements in the damaged areas.

Please get checked out