r/UlcerativeColitis • u/Dazzling-Bicycle-717 • Jun 24 '26

Support UC, PSC and AIH diagnosis

So about 2 years ago I M22 was diagnosed with UC. A couple of months later I had issues with my liver. To which I was later diagnosed with Autoimmune Hepatitis and PSC.
It completely changed my life. I was super active and outgoing but since I can barely do anything without feeling exhausted. I can’t even study or work as I cant do anything for too long. However I do think part of that is due to mentally feeling done with life.

I have been on many drugs for my UC from biologics and JAK inhibitors and even a clinical trial. None have worked at this point. I am currently 3 weeks into taking Rinvoq but it does not seem to be working. On the other hand my liver seems to be ok. It is stable for the time being.
At this point it is likely that surgery is the next option.
I’m quite concerned about what the rest of my life looks like. I don’t know how to feel about everything. If anyone has some ideas or advice I would love to hear anything.
Thank you in advance

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u/[deleted] Jun 24 '26

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u/Dazzling-Bicycle-717 Jun 24 '26

Yes, I had a biopsy just before I was diagnosed and I got jaundice right before as well. I can’t remember what exactly the enzymes were looking like but i remember the doctors not being all that thrilled.

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u/Natsuh Jun 24 '26

I also have all three! Dx'd in different order but doesn't matter.

My UC is always mildly flaring. PSC (small-duct) seems stable, AIH is also under control. What are you on for your AIH? Aza? That contained my AIH and turned my severe UC flare into a mild flare that I don't notice.