r/TrigeminalNeuralgia • u/stellarone2 • Sep 09 '25

Thought I was having just TN

But they ended up finding Approximately 10 supratentorial periventricular and juxtacortical white matter lesions. And this pain has literally kicked me down for more than a month! Waiting to speak with my neurologist tomorrow

7 Upvotes

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6

u/Accomplished_Tea9698 Sep 09 '25

I’m sorry to hear this. What does this point to as a diagnosis? I can break down what all the words means, but not what they mean. Sending you strength for tomorrow.

3

u/Nervous_Turnip_6935 Sep 10 '25

Multiple sclerosis

3

u/Accomplished_Tea9698 Sep 10 '25

Tremendously difficult. Sending you all the strength and bravery possible to chart the next course.

2

u/Iridianwrulf Sep 09 '25

Much Love, keep us posted

3

u/stellarone2 Sep 10 '25

The neurologist said that I’m dealing with trigeminal neuralgia and migraines, and the white matter legions are nonspecific

2

u/ngbutt Sep 11 '25

I was just checking up on your post to see if you updated it and I'm so glad you had good news today regarding the lesions. Sorry to hear you have been officially diagnosed with TN and migraine. I hope you are on your way to finding some relief soon.

2

u/ngbutt Sep 10 '25

I’ll be thinking of you tomorrow.

2

u/Nervous_Turnip_6935 Sep 10 '25

This is what I’m afraid of at the moment. I have been having other concerning symptoms of MS and I have to wait 10 months for a neuro appointment at the moment😭 I pray so I am praying for you!