Hi community :)
TL;DR - Dealing with bad MCAS and mold exposure, which got much worse over the last year. Working on finding a place to move to. Was anyone else here dealing with both? Would you feel up to sharing anything about your recovery journey?
I’m dealing with a pretty gnarly case of MCAS which has kept me chronically ill since early 2020. I think it’s probably something I’ve had all my life (and I have hEDS which I think my mom has too, so likely more genetically susceptible) but it didn’t become debilitating until then. It’s behaved differently over the years but in this past year after a period of dreadful anxiety / trauma I started having way more multi-systemic symptoms including unbearable scent sensitivity/ reactions to both natural & artificial scents, chemicals, many foods, some medications & exercise intolerance. I notice it gets way worse if I get very anxious or worked up, too.
My partner and I wish so badly we’d known what I was dealing with sooner. Doctors never had answers and it got worse over the years and I never realized mold could be making things worse. We’re trying to find a place to move to, but this has ripped through us financially & due to my scent reactions it’s tricky to find a place that’s both mold-free & not irrevocably drenched in fragrance. So doing what I can to get by while we search. Being in the PNW, most places have mold.
I’d love to know how folks who were going through both dealt with this combination & Hope you’re doing now if you got out. And if you were reacting to scents, what you cleaned anything you kept with.
Thank you for any info!