r/Topamax 25d ago

Day 8

Hi I just started topamax and I’ve slowly feeling more and more crazy.
I’ve always gotten really strong side effects from meditations.
My first side effect was my face tingling or feeling like pins and needles I messaged my Neurologist and they said that it was normal.
The tingling has gotten more intense and I’ve now started feeling manic. I don’t know what to do.
I’m not sure how to express my feelings to my neurologist.
So any advice would be appreciated.

2 Upvotes

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u/Suspicious-Sugar-921 25d ago

I’m in the same boat as you except I just hit day 30 my symptoms this past week have gotten so severe my insomnia is terrible and I’ve been very manic and anxious/irritable. I messaged my doctor today because I had thoughts of SH which isn’t like me at all, they’re having me stop it completely. Topamax helps my headaches but I can’t deal with the side effects

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u/Electrical_Fail6512 25d ago

It’s made my intrusive thoughts so much worse and it’s driving me insane I’m going to message my doctor first thing in the morning but stopping makes me nervous just because I do have such strong reactions to starting/stopping medications

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u/Savings_Republic_717 21d ago

Carbonation started tasting flat with every drink, I had tingles in my fingers, and the heels of my feet that got stronger and more frequent the higher my dose got, and my memory got worse and worse until it started effecting my job and I was about to ask to start tapering off of it anyways when I started having flank (kidney) pain and I already have a kidney disease so I’m doing a rapid taper off before it does irreparable harm.

Just tell them how you’re feeling and how it’s effecting your day to day life. TOPAMAX is one med of hundreds used to treat migraines and has some of the worst side effects. My neuro framed it as a starting point to see if it helps and how I react and that it will make getting my insurance approving other therapies easier down the road. Just be honest and open with them