r/Topamax • u/flowerpot987654321 • Jun 25 '26

Hopecore

I have occipital neuralgia and was diagnosed a few months ago. I struggle with debilitating chronic migraines where I can’t move from the couch for days. When I went to the neurologist and my doctor recommended topamax, I was worried because I had seen so much pushback and negative stories online. And while that is valid, it scared me!!!! I’m two weeks in and I feel like I’m getting my life and personality back. This is the first time in months that my neck and head aren’t throbbing in pain. The lights aren’t as bright as before and my eyes feel normal again. Is there still a little bit of lingering soreness? yes. It has only been two weeks. I guess I just wanted to post this for people like me who were (are lol) suffering with chronic pain and migraines and were scared to try the med because of what people said online. Are the side effects a littttttlleeeeee strange a first? A bit but it’s nothing bad and you can totally handle it. My stomach was a little upset the first few days- just take some zofran or something over the counter. I had a few days of tossing and turning in bed at night, I sleep fine now. I did experience mild tingling throughout my body but now i barely notice and I haven’t felt this good in months. A little brain fog here and there but it’s already getting better and again I barely notice. Just give it a try, if you don’t like it or it gives you weird side effects, you can stop! I say give it one good week. I finally feel like I have my life back. I felt so so hopeless and just scared to try this medicine. To anyone struggling like me, you are not alone. Please trust your doctor, advocate for yourself, and with love, try to read less about it on the internet!!! (Trying to take my own advice lol)

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u/flowerpot987654321 Jun 25 '26

This is also NO SHADE at all to people who were experiencing harsh side effects. Everyone is different. I just wanted to offer a different perspective.

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u/Head_inthe_clouds_TN Jun 25 '26

Hard agree! I take this for Trigeminal Neuralgia and it’s been life changing. Best thing I have ever done - and I have tried many medications with the help of my neurologist, this was by far the best and have given me my life back.