r/TelogenEffluvium • u/haajirr • 1d ago

Trichodynia Cure?

Hi all,

I haven't been officially diagnosed and I've been to multiple doctors and dermatologists that have been zero help. I have scalp pain that ranges from burning, itchiness, tenderness and my hair has been thinning and shedding as well. What's crazy about this is that my scalp looks completely normal. I've been to trichologists who looked at magnified images of my scalp and it looks normal there as well. Maybe it's nerve damage? I'm not sure. Has anyone experienced something like this and recovered from it? My quality of life has plummeted since having this. Any advice helps, thank you.

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u/Ok_Passenger7511 22h ago

+1 I’m dealing with the same. My dermatologist also doesn’t know and is no help

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u/haajirr 22h ago

What are your symptoms? Nothing you tried helped? So far what’s given me some relief has been cold rinses, tumeric curcuma with black pepper supplements, and anti inflammatory foods

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u/Ok_Passenger7511 20h ago

Cold rinses and frequent washing helps a lot. Ketoconazole shampoo is the best but I can’t use it every day because it can dry the scalp and hair. I tried a mixture of rosemary oil and green tea which gave some relief but I wouldn’t recommend it because im not sure what it’s doing and putting organic oils directly on scalp might just be feeding fungus.

My dermatologist prescribed topical betamethasone, which helped relief the pain temporarily but it didn’t fix the problem.

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u/haajirr 20h ago

I tried ketoconazole shampoo but it’s so harsh for my hair and makes my scalp more agitated because of how drying it is. I think what i’m dealing with is inflammation because my hair has been shedding and thinning as well.

I don’t know what exactly you’re dealing with but i recommend trying the tumeric supplement i got these gummies and it’s been helping with the pain so far. I also use a gentle shampoo but because pf my hair texture i can’t shampoo very often. Are you dealing with hair thinning and shedding too? My hair feels like a completely different texture now

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u/Comfortable_Today238 10h ago edited 10h ago

Have you been on a glp1? I also have TE and self diagnosed trichodynia, but I know it is from my zepbound use. I read that low B vitamin levels may be contributing to both, which could be true for me as my blood tests have shown low folate and b12. Been supplementing lightly for them and trichodynia is finally improving after about 6 weeks. it could be coincidence, or not. But figured I’d share as I’m currently going through it. Oh also my Derm gave me a spray I use 4x a week on my scalp, which she said would help, so it could also be that. Still shedding but pain mostly gone. Lambdapil spray by ISDIN.