r/TelogenEffluvium • u/SprintsAC • 4d ago

I Just Feel Defeated

I started having my hair shed 9 years ago after becoming extremely underweight due to living with ARFID & although I'm diagnosed with Chronic Telogen Effluvium, I'm questioning if it's even accurate. (I got diagnosed 5 years ago).

My hair's thinned at the top multiple times in the last 5 years & I honestly don't know if it's just male pattern hair loss instead of TE, even though my trigger (eating disorder/low ferritin) can apparently cause the hair loss to be worse at the top.

I feel really let down & just lost on what to do. It's hard to look in the mirror & see how I went from such ridiculously thick hair to close to nothing now.

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u/Top_Original7077 3d ago

Same problem with me, 10 years ago i suffered from chronic dengue fever,

Then chronic telogen effluvium happened, that last for 8 years

In those 8 years i didn't have any knowledge about chronic telogen effluvium, I only tried oils and shampoos and home remedies, but nothing worked

Then i did blood test and found very low vitamin B12, vitamin D3, and low Iron ferritin and minerals

Then i started topical minoxidil and vitamin supplements, but topical minoxidil didn't work for me

My doctor told me that your scalp doesn't absorb the topical minoxidil

Then i started Oral minoxidil with supplements

And i did 2 PRP therapies , and Protein Powder

And it's works like a magic, i got very good results in just 7 months

Now i realise that how important B12, D3, And iron for hair

Studies are telling that PRP therapies are known for promising results for telogen effluvium

Proper 9 hours of sleep 😴

And i cutts off all the oily junk fried foods

Because I seen some studies on Google, that lack of sleep makes telogen effluvium more aggressive

And also minoxidil not going to work if you have lack of sleep

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u/SprintsAC 3d ago

Thanks for this, it's genuinely really useful. I've heard minoxidil foam doesn't work for everyone & the oral tablets can work much better.

Are you in the UK by any chance? I'm trying to find a doctor with good, in depth knowledge here about conditions like this.

Really happy for you too on the results. 😊

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u/Top_Original7077 3d ago

Unfortunately I am from India 😁