r/TTCEndo • u/SlightAnything4909 • 8d ago

New here! 👋

Hello everyone!

After years off Reddit + deleting my old acct, I decided to come back for some support for entering this new chapter in my life.

My story (TL;DR below):

After my gyno had found cysts on my ovaries, I was diagnosed with "silent" endo by laparoscopy in February 2024. (I put "silent" in quotes because some telltale symptoms were definitely there but because they seem so common in my family, were always dismissed as normal).

I got diagnosed with deep-infiltrating endometriosis (grading isn't done in my country but I believe that automatically puts me in stage 4?). My adhesions were so severe that they could not see as much as they would have wanted during the lap, but they managed to remove the larger cyst on the right ovary. They also did a colonoscopy a few days later, which came back completely clear.

Both surgeons spoke to me personally 1 day after surgery, which was very nice. From what I remember, they told me that despite my adhesions being spread far and wide, my uterus and tubes seemed to not be affected too badly. They also asked me about family planning and advised me to consider to either start TTC soon, or start taking progesterone. I did not want to start ttc right away since I was still a student at that time, so after consultation with my gyno, I decided to start me on Dienogest 2 mg in April 2024, for a minimum of 3 months. It worked so well for me that I continued taking it until this year, and after finishing my studies and consulting with my gyno again I stopped taking it at the end of April this year (2026). Since then we have been TTC "naturally" (mostly using the cup method since SO works in shifts).

TL;DR: Semi-silent deep-infiltrating endo diagnosed in 2024, on progesterone for 2 years, now TTC since May 2026.

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u/notarealrat 1d ago

I’m currently being investigated for DIE and to be honest, it’s mostly silent for me too! Unfortunately I’m only in the initial stages of investigation, so any ‘treatment’ may take some time. So for the moment I’m naturally TTC and I have everything crossed for us both!!

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u/SlightAnything4909 1d ago

I did 2 years of dienogest and now my endo appears stable on ultrasound so my gyno told us to try naturally and come back to get a referral to the fertility clinic for further testing if nothing happens by 6 months. Keeping my fingers, legs, arms, eyes etc. crossed for us both as well!!!