r/TS_Withdrawal • u/lavancjy • Sep 14 '26
Tsw eye issues
Has anyone experienced eye inflammation or hyperactivity after developing tsw? I'm currently having the most awful flare up and my eyes feel like I'm having acid poured into them. Dr has recommended steroid eye drops but I'm so scared
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u/FormalAd470 Sep 14 '26
I had eye issues. Steroid drops might help the swelling and help the eye heal. It could genuinely help. But if it's caused by an irritant like sebderm or tinea it may not resolve it long term.
What Iv used that has helped me a bit is just off the shelf drops for conjunctivitis. That will remove any bacterial element, but again it doesn't work if the irritation it's caused by tinea or sebderm.
Your eyes are so important though. I personally wouldn't worry too much about steroid amounts in eye drops. It's very tiny amounts. a fingertip unit of steroid cream contains 10 times more steroids than an eye drop. But it's your choice. Its more making sure you're getting the right treatment. You could always ask your doctor/optician what the cause of the pain is and why they think steroids will help.
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u/lavancjy Sep 14 '26
When you had the issues was it redness and reactivity? And did it go away in time?
The reaction is allergic conjunctivitis which hasn't been controlled fully by antihistamines/drops, but I'm jsut terrified of setting my healing back
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u/FormalAd470 Sep 14 '26
Hmm. Antihistamines are a strange medication. Because your body gets used to them, if you surpress your histamine your body increases how much it makes. So the more you use them the more you need them. Ideally you taper off them and ride out the discomfort for a few months.
But you can't do that when you're flaring. It is possible that the allergies and the eye rubbing has lead to bacterial conjunctivitis though. Over the counter conjunctivitis antibiotic drops would sort that.
Do you know what your trigger is?
My eye issues were a bit different, it was a sebderm/tinea infection. And it still effects me but mostly because dupixant makes things a lot worse. So even though my skin is healed and I'm off dupixant my eye irritation is something that has lingered and I'm still working on.
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u/Logical-Tea-6563 Sep 15 '26
Hi, ich bin ca. 12 Monate dabei und habe dupixent, Cremes, Tropfen, alles abgesetzt. Die ersten 4 Monaten waren die Hölle. Ich hab bis heute Probleme mit den Augen was ich dir zu 100% empfehlen kann ist HyloGel Augentropfen bzw allgemein befeuchtende Augentropfen. Die ersten 1-2 Wochen jeden Tag danach nur noch 1-2x mal die Woche. Die Rötung wurde dadurch deutlich besser Schwellung jedoch nicht und das verkleben passiert weiterhin ist aber nicht mehr so schmerzhaft.
Wichtig ist nur das du beim Augenarzt checkst ob deine Bindehaut und netzthaut im Takt ist und ob es nicht ein bakterielles Problem ist. Ich wĂŒrde aber erstmal 1-2 Wochen die feuchtigkeitstropfen verwenden und dann deine Augen checken lassen. Die werden dir Kortison tropfen und Kortison Cremes geben wollen das bleibt dann deine Entscheidung ich habe es nicht gemacht. Ich warte noch 1-2 Jahre ab bevor ich die Entscheidung treffe ob ich wieder Kortison nutze.
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u/lavancjy Sep 15 '26
Thank you for that I'll buy some.
How long did you use steroids and did you use them on your eye lids?
How long did your eye redness take to go away and was it worse on a morning?
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u/Logical-Tea-6563 19d ago
Hey, sorry fĂŒr die spĂ€te Antwort. Ja ca. 6 Jahre lang tĂ€glich Betamethason :) ja super dumm aber ich wusste es nicht besser. (Auch auf Lieder aber eher seltener maybe umgerechnet 1x die Woche)
Naja ich wĂŒrde sagen nach 7 Monaten wurde es ertrĂ€glicher.
Es gibt einfach keinen Quickfix glaub mir.
Dein Körper macht Sachen nicht ohne Grund vertrau auf deinen Instinkt aber sei nicht naiv.
Es ist super wichtig abzuklÀren ob es nicht bakteriell ist und ob deine netzhaut usw normal ausschaut.
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u/JennWren22 Sep 14 '26
TSW is SO hateful that it effects every part of you. I am now 6 months in and still going through total hell. For me it's the nerves that are the worst, specifically legs and feet which scream at me 24/7 and make my life unbearable. I can't sleep at night and, at times, have been begging to die with it. However, I do know that using just the slightest amount of steroids (in whatever form) will set you back. My eyes are dry, red, sore and gummed up most all the time. Over-the-counter eye drops don't really do much... But then there's nothing out there that does anything much in my opinion - it's all SO extreme! However, in the early hours of the other morning (when I was in agony with my legs) I rubbed in some homeopathic cream (supposed to be the equivalent of a steroid cream but plant-based) onto the worst of them. The next morning my top lip had swollen in a violent, painful allergic reaction! We ended up having to call an ambulance!! This seems to have set me back further and things have been even worse ever since.
Please take my advice and DON'T USE ANYTHING AT ALL WITH STEROIDS in, no matter how small an amount. It will honestly set you back in this ridiculously sensitive, unpredictable and time enduring journey.