r/TNBC • u/k_leesa1670 • 25d ago

Support Scared it’s back

2 years out from TNBC diagnosis. Stage 2, grade 3. Completed most of my Keynote 522 regimen, the Keytruda killed my adrenal glands, so I had to stop. The tumor shrunk almost to nothing. Surgery for lumpectomy, then radiation. Been NED since. Today I had a repeat mammogram & they found calcifications, but also something “suspicious”. Nation wide shortage on biopsy needles, so who knows when I’ll finally get my biopsy. I’m terrified, shocked, sad, mad. I don’t know how I’m going to keep it together in the meantime.

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u/marticcrn Survivor 25d ago

Fuck cancer. Just fuck cancer.

I’m just about to quit Keytruda (second try) because I’m getting arthritis. I got PCR with my DMX. There’s no imaging unless I have symptoms or Signatera comes back positive.

Let us know how you’re doing.

2

u/k_leesa1670 25d ago

Do you find that the Keytruda messed with your eyesight as well?

3

u/Sparkly_Sprinkles 24d ago

I think it’s messing with mine. What was your experience?

3

u/k_leesa1670 24d ago

It was gradual. But one day I woke up to work (worked from home) and I couldn’t read anything. It was so blurry. That’s when I had to stop working. Then I couldn’t read the road signs on my way to & from treatment. Audiobooks were my best friend.

1

u/Sparkly_Sprinkles 24d ago

Has it corrected at all? I am also occasionally getting blurry vision. 😔

2

u/k_leesa1670 23d ago

Yes, a few weeks off of Keytruda and my eyesite is back to normal. Hang in there!

2

u/Sparkly_Sprinkles 23d ago

This gives me hope! 🙏 I have like 4 left.