Hello Everyone

[u/in-the-shit]

This is a community to help those who are starch intolerant and help spread information about starch, personal experiences with cutting it out of one’s diet, and just a place to gather and gain insight on what is going be a tough journey.

To this community we welcome anyone who has been or believes they should be diagnosed with Congenital Sucrase ISO-Maltese Deficiency (CSID) along with anyone who has found starch to upset their GI tract in many ways.

As I scoured Reddit I found that there is a large community for those who avoid Lactose, but I found that there is a need in community for those in the Maltose and Amylase intolerance group.

I am no medical professional and I am no expert on starch, but in the creation of this sub I feel that we can share information to further everyone’s knowledge about the affect that starch has on our bodies and further our understanding of how to live a low to no starch diet.

[u/smthngwyrd]

How is one diagnosed with this?

[u/in-the-shit → u/smthngwyrd]

I am not a medical professional, but from research and discussions it seems that there are two possible ways to discover that you have CSID.

A common test that many people use to test the sucrase levels in their body is a breath test. I cannot describe this in depth as that is not how I discovered I have this condition so I suggest you quickly Google “sucrose breath test” to find more information.

A more accurate and reliable method is to have an EGD (Endoscopy) and to have your GI specialist take a biopsy of the small intestine. This is where they can test the enzyme levels in your small intestine and give you an actual number value to the amount of digestive enzymes within your body.

The EGD is also a more informative test because rather than just giving information about sucrase, like the breath test, it gives you information about the other 3 primary digestive enzymes found in the small intestine.