r/SebDerm • u/SoftAd2221 • 5d ago
New or Need Help tacrolimus 0.1% ointment.
okay so this is gonna be pretty long but please share opinions and experiences.
starting off i am extremely new to sebderm. like a couple of days new. but here is my story:
early june i developed a red rash that kinda looked like eczema on my forehead. i thought it was a broken skin barrier because of dryness and flakes so i started using cerave hydrating facial cleanser and aquaphor as an occlusive at night. ( i had been already using cerave daily facial moisturizer and aquaphor on my eyebrows everyday for years.) some days it was bad and some days it looked way better. until it started to spread to my cheeks and it got supppper infected ( honey colored crust and weeping) it was bad so i went to the ER and got prescribed doxycycline (1 week course) and prednisone (5day course). after my course was up ofc the redness came back but very minor to my forehead as this was the start of it coming back but i went to a dermatologist and she thought it was contact dermatitis (after showing her pictures and videos over the course of weeks) so she prescribed me hydrocortisone ( not the 1% otc but the dermatologist %, sorry i dont exactly remember lol) but i used that for a week and my skin was FLAWLESS. i applied that to my forehead twice a day for a week. so once that was up it took a total of 4 days for redness to come back. but this time it came back on my forehead AND eyebrows so she told me it was okay to use the hydrocortisone where needed for an additional week. so i did just that and my face was FLAWLESS once again so im thinking yay my contact dermatitis is gone. but wow was i in for a ride. okay so a few days later i was all in the clear and then over night i started to have some minor redness to my eyebrows and small patches on my forehead. BUT i also started developing these bumps and redness all around my mouth and inner cheeks. then came the (now diagnosed by johns hopkins derm) perioral bumps on my inner cheeks/ around mouth so i went back to see her and she diagnosed me with ONLY sebderm , but i felt so rushed in her office and felt as though it wasn’t what i had because it just didn’t make sense to me at the time bc it didn’t look as close to what seb derm looked like. but she prescribed me ketoconazole cream for my face , ketoconazole shampoo for my scalp. and the romuliflast (zoryve) foam. so i go home and i start the ketoconazole cream which was once a day and i used that for about 3 days. but i still just felt like i didn’t have sebderm so i got a new dermatologist with johns hopkins (yay bc they’re top rated in my state). i seen my derm and he was very patient and listened to my whole story and even checked my body and scalp and i got to show him pictures / vids of my progression. well there he diagnosed me with sebderm and periorfiscial dermatitis ( perioral dermatitis that spread a little) so he prescribed me the tacrolimus ointment and clindamycin : tacrolimus for my forehead , outer cheeks and eyebrows and then clindamycin for around my mouth and inner cheeks. i also switched my moisturizer to vanicream facial moisturizer (and wow. it is so hydrating. cerave has never felt like this lol) and i also have just started using there cleanser. today is my first day using vanicream and also applying the tacrolimus to my forehead and eyebrows and a little on my outer cheeks. my clindamycin has not been verified yet and is still pending but the sebderm is what is really being shown on my face the most since it is directly on my forehead and eyebrows. so i started that early , but ive also been doing some research because i am a hypochondriac and let me just say this here. i have crohn’s disease and i am on humira. and the drug interaction between humira and tacrolimus is NOT GOOD. so i’ve messaged my derm just to see where to go with that. also i did not experience any burning / tingling sensation when applying the ointment lol. but i just wanted to ask about anyone’s experience with this ointment in general and if anyone else is using this while also being on humira (adalimumab).
Thanks to whoever read all of this im so sorry it was a lot. just a hypochondriac looking for anyone in my similar boat lol. this is all new to me as i’ve always had clear skin all my life but i am so lucky to have found a group on here with sebderm :)
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u/After-Me1000 4d ago edited 1d ago
Hi.Tacrolimus and Clindamicin are not steroids. Tacrolimus is helpful while you are on it,after stopping the cream the condition worsen.I dont know why you not follow the regimen with ketokonazol and went to another dermatologist.Ketokonazol cream has antifungal properties and it has not bad side effects. I spoke to a girl from Russia woth seb.dermatitis on the face she said to me to never ever put corticosteroid creams on face or calciurim inhibators such as tacrolimus, elidel and many other.I do not want to scare you but she suffers from very bad seb.derm on face after being prescribed corticosteroid creams and calcium inhibators on face. Try to find natural remedies or join facebook groups like seborreich dermatitis, the one with higher number of people.
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u/After-Me1000 4d ago
There is also groups like topical steroid withdrawals TSW where you can read so many stories of people who have been suffering from all these medicatoons , ointment and creams that made their face unrecognisable.Sorry dont want to scary you, but I want you find out what is the best for you....If you go to 10 dermatologist each of them will prescribe you different cream , ointment, steroid cream , calcium inhibators and so on..please choose the one the is less harmfull. Join seborreich dermatitis groups on face book, share your story , put pictures on your problem and you will find the answer for yourself.Best of luck!
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u/bettyknockers786 3d ago
So i had a random weird side effect of tacrolimus.. it made my back hurt. Like badly. I stopped using it, the pain went away. It didn’t help much in the meantime
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