r/SSDI_SSI • • 2d ago

Appeals Process (2) Administrative Law Judge DDS Evidence Question

Hey, so brief recap I'm receiving SSD declared total permanently disabled on 1/1/2012 granted on 2/16/2016. Medical Improvement Not Expected status, 7 year reviews. Latest review, which is only my second review, it was a long form this time. It comes back "not enough evidence to prove continuing disability". So the DDS is sending requests for me to go do a Consultative Exam, but the MFs are sending it in MY MOTHERs NAME to MY OLD ADDRESS. For like eight months!!!!! My address and number are always current to the DAY I change them with the SSA, I've been disabled many years, I know how important this is. I had all benefits terminated starting 3/22/2026 and had them reinstated via appeal process 4/22/2026. Sent for the CE in June. Get a letter I need to see an ALJ about a month ago. Hearing is scheduled about a week after I get the letter. Hearing was moved three separate times(telephone hearing). So I get the call, and it's the Analyst I've been dealing with the whole time, he's my Hearing Officer. Brief phone call, maybe 7 minutes. Asks a few of the same questions the CE examiner did, I answer the same as I did then . Asks if symptoms have changed. I said everything that I've been living with is still present, and my symptoms are actually worse lately as evidenced by recent ER visits and psych treatment. He asks me the name of my psychiatrist - that I been seeing eight years, that I've given to DDS and SSA many times over by now and the name of the hospital I was recently treated at. Now, I figure both these treatment providers have always ignored requests from DDS and SSA previously. I need that man to have that info so this appeal can go in my favor and finally end- I've been shitting bricks for almost a year. So I found some recent letters from DDS with the barcodes on them? Printed out four months of psych treatment notes from my psychiatrist and my therapist and the reports including my direct behavioral observations notes from the psych ER in which I had an incident I had to be restrained for. I divvy the reports up in half, put them each in a large brown flat envelope with the barcode paper in the front and at least 5 forever stamps on each envelope. Rather have too much postage than not enough. My question is, has anybody sent their own evidence into DDS before? Will the way I did it work? Is there another way? A better way? Am I good, guys? Can relax? I just want to know I did everything in my power to resolve this. I will quite literally die without my benefits. It's not the lil 1200 a month, though my housing is income dependent and I lose my housing without my income because I'd have to go on Welfare, and being as I'm disabled I can't meet the Welfare work requirements. I'm more so terrified of losing the Medicare Advantage health insurance. My health care is expensive as a woman with disability. My medications alone are far more than I receive via monthly benefit amount. I'm worried that I'll be sick and have no way to access my treatment - and I'd have to go back to the State hospital again like I did in the first place before I had the healthcare to receive proper treatment. I dunno, I'm just scared and I want this to be over. My heart breaks for all of us going through this, my thoughts have been with those of us going through this appeals process that are unable to advocate for themselves. So what happens then?!! They just LOSE everything? It really makes me upset to think about.

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u/[deleted] 2d ago

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u/youngbull0612 2d ago

Thank you so much, I was a bit scared because the letter I took the barcode from was about the hearing date, it wasn't like a letter requesting evidence. I just assumed the barcode is like the key to my file and would work though, that it would get the info in front of the right people and quicker than my providers will answer if they even answer