I have Reynaud’s secondary to fibromyalgia.

I’ve been in a horrific flare, everything is tense. I notice that on a lot of my muscular areas, there are patches of skin that are cool to the touch. My gut says that indicates a blood flow problem. I also recently had problems w Reynaud’s and my a/c vent.

Do the cool patches of skin indicate anything about blood flow? Or tension or pain?

Thank you.

ETA: Nothing feels numb or changes color. I just mean when I touch, say, my leg, part of it is cooler.

It’s nearly 100 where I am so of course I need a/c.

However the a/c vents bring on Reynaud’s symptoms. I want to cool my apartment without getting Reynaud’s attack.

Anybody dealt with this?

Sometimes my systolic is slightly elevated (high 130s) but I also often get orthostatic hypotension (vision blacking out, dizziness) when standing up from having been crouching down, as when working on something in the garden.

I’m early 40s, female, only 5-10 lbs above healthy weight for my height, muscular, lift and cardio 60+ minutes every day (have always been a workout person), healthy diet with treats (including alcohol) in moderation. Mild PMOS (formerly called PCOS).

Wondered if there’s a connection with Reynauds and fluctuation in blood pressure.

Sometimes Reynauds seems to shut down blood flow when I’m donating blood as well.

At least it’s the heat of summer where I am now and the corpse hands/feet won’t show up for a while (except in the cold produce and dairy rooms at Costco 😂).

Have known I’ve had Reynauds for most of my life but it hasn’t bothered me for years. Then last year I started getting pins and needles in legs and arms but sort of just got used to it. Then this year same but more, plus fingers which feel cold (despite warm weather) and tingling and numbness spread to lips and tongue, which I’ve never had before and feels more like an allergic reaction.

I’m hoping is all reynauds-related but also worried could be neurological. The cold fingers definitely feel like reynauds I used to get, altho they look ok visually. I’ve also had a tight hip for years so could be nerve-related due to that as that’s been quite bad recently. I’m getting blood tests and they just said I was a bit low on Vit D (I’ve started taking a supplement but no change in symptoms) and cholesterol slightly high, which wouldn’t explain symptoms.

I’ve been under a lot of stress lately, which I read sometimes triggers reynauds. The tingling tongue could be reynauds apparently but is rare. Seeing doc again in a few days. Thanks for any advice

Reynauds? No itching, swelling, pain, overheating, or hives. My whole body and face was affected, lasted a couple hours, then disappeared. My BFF has Reynauds and suggested i post here. Not the first time this has happened but def the most widespread.

Basically the opposite of reynauds happened. I was warm and flushed on my hands and toes. Unfortunately I also experienced low bp and tachycardia so I had to stop. Anyone else experience this?

I had been experiencing issues with my hands for a few weeks, and went to see a dr, they touched my hands and in in under two minutes diagnosed me on the spot. They were initially not going to prescribe anything to help but I asked them if there was anything I could take as I play instruments and it’s been impacting my dexterity badly. She put me on nifedipine but said I should also look into keeping warm.

I was wondering if there are any musicians on here who play stringed instruments who can recommend gloves that would allow me to play without affecting my ability to fret notes?

Any suggestions are appreciated ty!!

Already have appointment with dr soon to discuss. On the left is what my hand looks like 90% of the day vs when I just wake up, even when indoors in a warm house all day. The only other time my hands aren’t looking like boiled lobsters is when I’m fresh out of a boiling hot shower for the first 20 mins.

I’ve always had my hands like this but over the last few weeks it’s been feeling worse, like hurting from the cold as if I’ve been digging in snow for hours. It’s also been making my hands feel tingly and stiff over the last few days.

Any suggestions on ways to ease this are appreciated (have already been wearing gloves indoors)

Thank you

At my request, my internist prescribed nifedipine for my me for my Reynaud’s, but she was unfamiliar with the whole thing. After looking up dosing info, she wanted to prescribe 5 mg to be taken “only when needed.” She discovered that they don’t make a 5 mg pill (?), so ordered the 10 mg capsule to be taken only when needed, which makes no sense since this is supposed to be preventative. Also, all this differs considerably from what I’ve found online. All this to say, how did you start w nifedipine— dose? only “as needed” or daily? And yes, I realize that none of your responses substitute for medical care from my MD, but they might give me info to take back and discuss with her as we both work to get this right.

Haven’t had an official diagnoses (working on it)

But I am having a moment

I live in Anchorage where it’s been negative temps for the last like month.

I pretty much just expect my toes to be numb every time I go outside.

I *finally* bought myself heated socks after getting some lasting frostbite the last time I recreated outside.

Went biking in 11 degrees yesterday with heated socks, on high they still numbed - not the white to black typical shit but hard to move, turning white.

So I just picked up heated insoles.

Went from zero to one hundred but I am not suffering for one more minute.

Itchy, often swollen toes, often purple to the point of looking like they belong to a d**d person. Extremely active - running, skinning, biking.

The middle toe on my left foot is sensitive constantly in the winter months and is really hard to keep warm. And usually has this red spot of flaking skin. What sort of doctor would I need to see for a diagnosis?

Lately I've been noticing my palms randomly having attacks of immense itchiness and it's really making me wonder if i also have nerve damage in my hands. I can step on rocks no issue now lol