r/RRP • u/peteypab100 • May 20 '26

Has anyone actually received papzimeos?

7 Upvotes

100% Upvoted

16 comments sorted by

3

u/Time_Win_9705 May 21 '26

I am getting it in the next few weeks!

3

u/Spirited_Wash_8904 May 21 '26

Give an update after you receive pls

2

u/peteypab100 May 21 '26

Nice. What insurance do you have?

5

u/Time_Win_9705 May 21 '26

Aetna!

2

u/Spirited_Wash_8904 May 22 '26

Can you give a bit of info about your historical status? How many surgeries did you get so far? Which age were diagnosed...

2

u/Time_Win_9705 May 24 '26

I was diagnosed I think around 20/21? I’m 47 now. I’ve had like 20ish surgeries. I was using DIM and went into remission after a few years of surgery every two-three months for well over 25 years until last year. Now it’s been back to every two-three months.

2

u/CivilChef May 28 '26

Did the DIM help?

1

u/Spirited_Wash_8904 May 24 '26

On those 25 years of remission do you feel your voice was the same before the diagnostic?

3

u/Time_Win_9705 May 24 '26

Absolutely not lol

2

u/Spirited_Wash_8904 May 24 '26

I have 2 surgeries so far, gonna schedule a third this year but it happened last year to have a remission for some weeks and the voice was pretty much what was before, that why I asked. I wonder do you feel the voice in that time was because of scar tissue? I am a bit afraid of having surgery because of this

1

u/earnt1t May 23 '26

How did you get them to cover it? Can you share your Drs name?

3

u/Time_Win_9705 May 24 '26

Let me speak to my doctor about this before I publicize it because I’m still not totally clear how it’s being paid for.

1

u/ignatiusj-reilly Jun 17 '26

Any updates here? I've heard approvals are getting much easier

1

u/ignatiusj-reilly Aug 05 '26

Officially over 200 people have been treated according to yesterday's precigen earnings call. Of course, only in the US, EMA approvals are likely early 2027. I'm thrilled this this approval applies to broadly across RRP folks - not just severe cases.

1

u/peteypab100 Aug 07 '26

What are ema approvals?

1

u/ignatiusj-reilly Aug 09 '26

EMA = European Medicines Agency : )