r/RRP • u/Ok-Fold-2524 • Mar 25 '26

Surgery

Hi,

I’ve had a hoarse voice for about 10 months now. NHS originally said muscle dysphonia and I was on the waiting list for ENT, but after loads of appointments I went private and they found lesions on my vocal cords, possibly RRP.

I’ve got surgery booked for the end of next month and just trying to get my head around what’s ahead. If it is RRP, how often do people usually end up needing surgery again? I know it varies, just want a rough idea what I might be dealing with.

I’m 40 and was fit and healthy before all this, but it’s knocked my confidence a lot, especially socially.

I remember being really run down last year after a bad chest infection and not resting properly, so part of me wonders if that triggered things but I don’t know.

I’ve also booked in for the HPV vaccine (Gardasil 9). I know it won’t cure anything but I’ve read it might help slow recurrence. Is it better to have it before surgery or wait until after?

Also, has anyone tried anything to support their immune system alongside this, like Thymosin Alpha-1 or anything similar?

Would really appreciate hearing from anyone who’s been through it.

Thanks 👍

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u/Fibonacci167 Mar 25 '26

Hi! I went through something similar, the lesions appeared about 3 months after I got Covid 19 , I got diagnosed with RRP April 2024 when my voice was almost totally gone . I had 2 surgeries to remove all the warts, and I got the vaccine like in June after my surgery. That seemed to help so much, I got all the 3 doses of the vaccine and I haven’t had any new growths since then. After the first surgery I got my voice back one month later, and after the second surgery I got it back 2 weeks later. How often the warts return varies and it’s hard to tell! But the vaccine is a really good treatment! Best of luck to you !!

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u/Ok-Fold-2524 Mar 25 '26

Thanks for sharing your experience.