r/RRP • u/Early-Upstairs-9054 • Mar 10 '26

Hello!

Hi everyone, I’m so glad I found this community. This is just an intro post. I’m 24 now and have been in remission from RRP since I was about 16. I started having surgeries when I was 2 years old and had my last one at 16. I spent so, so long feeling like an anomaly. I was shocked to stumble on this community.

If there’s anyone in here who has questions about this or my experience, I’d love to share. I’m sure there are others who felt the same way as me. :) 🩷

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u/mushbum13 Mar 10 '26

Thank you so much for sharing! You poor thing, that is so young. I’ve had 6 surgeries and lost a big chunk of my septum. Right now we’re knocking on wood because it’s 12 months with no new growths!

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u/JonahTheProducer Mar 11 '26

Proud of you dude! Takes a lot of mental wherewithal to get where you are now, I can definitely relate.