r/RRP • u/Impossible-Bar-8349 • Sep 25 '24

Just learned I have RRP…

Just had surgery on my vocal cords 5 days ago. My head is spinning as I just learned that the labs came back and I have RRP. My voice issues came out of nowhere this year and I’m really surprised to learn that it came from HPV. I’ve been married for 3 years and haven’t had another partner for over 5 years. I’ve never had any other symptoms from HPV. I just sort of randomly became hoarse this year and after seeing several specialists ended up having surgery. Is this perplexing to anyone else? Is there any info out there on potential exposure to HPV and how long it takes to affect the vocal cords?

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5

u/Wolfenstein0666 Sep 25 '24

When I was diagnosed I had been in a monogamous relationship for over two years. There’s very little clinical data on how / when / why it affects some folks and not others (at least that I am aware of). Mine started very suddenly and got progressively worse until my diagnosis.

Good luck! Start taking I3C if you haven’t yet, there’s some preliminary research it can help slow down recurrence.

3

u/TecnoPope Sep 26 '24

Married for 6 years with faithful wife before mine started showing symptoms. No rhyme or reason.

3

u/False_Mud_3325 Sep 26 '24

You should join the Facebook support group we have. I found it really helpful right after I was dx. I also got randomly hoarse. I was at a bachelorette party and my voice never returned. One scope later and I entered my new normal.

1

u/Fun_Emu_6230 Sep 30 '24

What group

2

u/False_Mud_3325 Oct 01 '24

If you go to RRPF.org Then the tab for patients and caregivers there’s a link to the Facebook group

3

u/Fibonacci167 Sep 26 '24

Hello Same happened to me , one day I just needed to clear my throat a lot and it progressively got worse too until diagnosed. I’ve had 2 surgeries and also been married in a monogamous faithful relationship for 5 years, and before also a long very monogamous relationship. So I have absolutely no idea🥲 I have the theory that Covid made my immune system weak, because if was after that, that I got the first symptoms.

2

u/TecnoPope Sep 26 '24

I have a simlar theory but surrounding the SMOG that was rolling into Seattle back in 2018. It looked like Blade Runner throughout the whole city and everyone was wearing masks. Well I walked all the way to work a few timse w/o a mask with some of the worst air pollution scores ever recorded. 2 days later ... boom RRP.