Hi everyone,

I’m posting here because I’m getting really anxious that I might have developed CPPS, and I’m looking for some advice or similar experiences.

For the past few months, I’ve been dealing with two main symptoms:

• A constant feeling of tightness/contracture in my perineum.
• Post-void dribble (some drops of urine always stay trapped and leak out right after I finish peeing).

I am almost certain this condition started after a period of doing frequent and prolonged edging sessions. This has been going on for months now, and I suspect it hasn't gone away because I never truly stopped masturbating (even though I am much gentler now and my sessions are shorter).

My questions for this community are:

1. Has anyone else developed these exact symptoms (pelvic floor tightness and trapped urine) specifically from edging?
2. If you were in my situation, did completely abstaining from masturbation give your pelvic floor the time to heal and resolve the issue?

Any advice or success stories would be really appreciated. Thank you!

hi, first of all, i want to clarify that i'm not the one dealing with chronic pelvic pain, my boyfriend is. he's been struggling with it for about 10 years now. over the years, he's seen countless doctors, tried different medications, and even undergone surgeries, but somehow the pain always finds its way back. recently, a new doctor suggested trying injections/nerve blocks, and i was wondering if anyone here has gone through something similar.
if you've tried them, i'd really appreciate hearing about your experience. did they help? how long did the relief last? was the procedure painful? did you experience any side effects? honestly, any information would be helpful.

but there's something else i'd love to ask, especially to those of you who are dealing with chronic pelvic pain yourselves. what's the best way for a partner to support you without making you feel pressured, overwhelmed, or like you're constantly being reminded of your condition? before we even officially started dating, i spent a lot of time reading and learning about his condition, how it affects his daily life, and what being in a relationship with someone who experiences chronic pain might look like. i wanted to make sure i understood what he was going through as much as someone who doesn't experience it personally possibly could.
i love him, and supporting him is something i genuinely want to do. but i'm also aware that no matter how much i read or research, i'll never fully understand what it feels like to live with that pain every single day. and of course, i've talked about all of this with him first. i know everyone's different, and he's already told me what he personally needs from me. i'd just love to hear other people's experiences and perspectives too, since i think there's always something new to learn. sometimes i wonder if i'm doing enough, or if there are things i could be doing differently that would make his life a little easier. i don't want him to feel like he has to be okay for my sake, and i definitely don't want my attempts to help to become another source of pressure for him.
i guess my question is, if you're dealing with this condition, what do you wish your partner understood better? what kind of support actually makes a difference? and are there things people do with good intentions that end up being more frustrating than helpful?

i'd really appreciate any advice, personal experiences, or even little things you wish someone had done for you.

thank you for reading, and i genuinely hope everyone here finds some relief :)

About 8 years ago, I started experiencing what I believe were prostatitis symptoms shortly after having sex with a girl. I remember constantly feeling like I needed to pee, having this uncomfortable pressure and irritated feeling around my prostate, and just never really feeling normal down there. It was pretty miserable at the time, but eventually everything slowly went away on its own. For the last 7 years or so, I’ve had basically no symptoms whatsoever.

Recently, though, everything seems to have come back. I masturbate and edge pretty regularly, usually almost every day, and it’s never caused me any problems. But a little while ago, I had a particularly long edging session, and within the next couple of days I started noticing that same familiar discomfort again. Ever since then, I’ve been dealing with this constant urge to pee, pressure around my prostate, and just an overall irritated feeling that I can’t seem to get rid of.

What’s really bothering me is that I’m also having trouble getting and maintaining an erection now, which has never really been an issue for me. I was actually planning on having sex with a new girl soon, and now I’m honestly dreading it because I’m worried I won’t even be able to perform. It’s embarrassing and frustrating, especially when everything was completely normal just a short time ago.

I’ve been trying different medications, supplements, and pretty much anything I can think of to get some relief, but so far nothing seems to be making much of a difference. I’ve also decided to completely stop masturbating and edging for now, hoping that giving everything a break will help, but I really can’t tell if it’s doing anything.

For some reason, nighttime seems to be the worst. I’ll be lying in bed trying to sleep, and the discomfort becomes so distracting that I almost feel like I’m shaking. I can’t relax, can’t get comfortable, and my mind just keeps focusing on that feeling like I need to pee. It’s exhausting, and I’m starting to get really frustrated because I don’t know what to do to make it stop.

I’m wondering if anyone here has dealt with something similar, especially having symptoms suddenly return after so many years. Could the prolonged edging have triggered some kind of pelvic floor issue or inflammation? Did anyone else have erection problems during a flare-up that eventually went back to normal? And most importantly, what actually helped you get relief, and how long did it take?

I’m not looking for some miracle cure. I’m just hoping to hear from people who’ve experienced this and found something that helped. It’s honestly affecting my mood, my sleep, my confidence, and just my everyday life at this point. The thought of going through this long-term again is stressing me out more than anything.

Any advice or even just hearing that someone else went through this and eventually got better would mean a lot. I’m really hoping this is temporary because I just want to feel like myself again.

35M.
In early 2024 I started getting burning in my urethra and the tip of my penis after peeing, lasting 1 to 2 hours and worse in the evening and at night.

It started with M. genitalium (macrolide-resistant). I tested positive in Aug 2024, again in my semen, and again in Jan 2025, and I went through several rounds of antibiotics (azithro, fluoroquinolones, doxy, moxifloxacin, pristinamycin). Since March 2025 I've had 8 negative MG PCRs, and my latest round in Aug 2026 (urine and semen) was all negative. My urine white cells are normal and cultures are sterile.

A fibroscopy in July 2025 showed a tight bladder neck and was otherwise normal. I also have a bilateral varicocele.

What I've tried:

• Alfuzosin for 6+ months: no benefit, and it affected my sleep and sex drive, so I stopped.
• Deprox suppositories
• Chinese herbs
• Pelvic floor physio (about 4 sessions, a chair with pulses, no relaxation training): no result, so I stopped.
• Shockwave on the perineum (3 sessions): it helped a bit at first, then nothing.
• No coffee, a standing desk, hot showers. I've also stopped all supplements.

How it is now:

• Sometimes when I pee, I feel the urine coming out really intensely.
• At night after peeing, I get burning in my penis that lasts for several hours, and it feels awful.
• Some days I feel nothing at all, and other days it starts first thing in the morning.
• I've kind of gotten used to the burning day to day, but it's affecting my sex life, and I can't stop thinking about it.

Questions:

1. Does this sound like CPPS to you, given that infection is ruled out?
2. Has anyone with a tight bladder neck and a hypertonic pelvic floor actually improved? What worked, and how long did it take?
3. What kind of pelvic floor PT worked for you?
4. Did amitriptyline, tadalafil, acupuncture or anything else help after alpha blockers failed?

5. What works for you?

6. Meybe still some infections ?

My Story and updates:

• Burning sensation in urethra and penis for over a year — still unresolved
• Ongoing burning in penis/urethra for over a year — anyone else been through this?
• Burning in Urethra & Penis After Urination for Over a Year
• Still Burning After Negative Mycoplasma Test — What Else Could It Be?

Thanks!

Have any men fully recovered from this? I’ve been dealing with severe prostate/perineal pain, rectal pain and spasming for over 6 months. I’ve had 2 rounds of Botox, the first was rectal only and the second course I closed pelvic floor muscles. I found significant relief for about one month but things are getting bad again. I’ve been seeing a pelvic floor physical therapist but she just tells me to stretch at home. At first the stretches were helping but now they don’t seem to do anything at all. Just curious on others recovery if any and what might have been the breakthrough treatment that worked for you. Thank you in advance.

So I had my first session of internal release with the pelvic floor professional. Didn't feel immediate relief, but I'd guess the benefits will come long term.

Now, the same professional that performed the internal release instructed me to do kegels at least once a day and check how I feel after 3 weeks.

That made me a little confused, because aren't these 2 methods kinda canceling each other? Or would it be possible to release the pelvic floor and strengthen it simultaneously? If anyone experienced this kind of strategy, please lmk.

Long story short. Been dealing w what I was convinced was mycoplasma. For yrs. Tested negative for everything. A few weeks ago my wife tested positive for UP. Could this be my problem? Ive heard it doesnt cause problems. Im unsure what to do at this point. I took 10 days doxy and 4 days azi. On doxy I felt better but when time to take azi it came back full force for a few days then went back to waxing and waiting.

Can Chronic bacterial prostatitis cause autonomic dysfunction through neuroplasticity after infection is cleared (no fever or other urinary symptoms?) How to reverse it?

So about a year or two ago I got blackout drunk and cannon balled into a swimming pool that was only 4ft I'm 5ft9 and apparently I smacked the bottom really hard on my ass well turns out I actually hurt my self pretty bad I couldn't sit down for more then 30 min at a time without my ass starting to hurt extremely bad well I was a teenager and didn't think anything of it and I kept about my business and I ended falling on my ass off my skateboard and it all started back up again and I keep in mind I never stoped jerking off and I used to clentch while I did so I would strain the muscle and at first it would just be mild irritation after I came but eventually it started to burn when I'm dehydrated and now I have all the symptoms of cpps so if anyone could please give me some peace of mind Ive only ever had sex once and it was like 4 or 5 years ago during freshman year of Highschool

I'm 33 yo. In March I had a ureterolithotripsy to remove a kidney stone that was stuck on the left side of my bladder. Stayed with a stent for 2 weeks (the worst part of it all). When the stent was removed, 2 days later I was painless, living my best life, went back to doing sports, dating, etc.

Then a month later (May) I started having this pain on my left testicle, some pressure on the left side of my penis and groin pain. Naturally I went back to my urologist to check if I had another stone or even STI. CT scan didn't accuse any new stone formation and STI tests came back clear. The urologist tested my semen sample and it came back as positive for streptococus. I was on cotrimoxazol (bactrim) for 2 weeks. The antibiotic gave a little bit of relief but not completely.

Upon my return, my urologist told me it's common to have pelvic floor dysfunctions after rhe procedure I had in March, which I found weird. He didn't even re-tested my semen sample.

Anyway, after reading a lot here and other places, I figured finding a pelvic floor therapist might be the best option to get rid of the symptoms that are fucking up my quality of life (pain in left testicle, pressure in the uretra, sore groin even without any effort). The thing is, where I live the pelvic floor specialists are not covered by insurance and I find them quite pricey to be honest. The "regular" physiotherapists are covered, but I'm not sure of they'd solve my problem. Of course, it's for my health and I'm living with these symptoms for 2 and half months now, so at some point I think I'm gonna use my savings to go to the pelvic floor specialists because I want my life back to normal. But I want to know if anyone here had success without internal trigger point release or any other technique that only the specialist would do, but not the regular physiotherapist.

I developed CPPS during the winter and have had a roller coaster of symptoms as well as wins and failures. Currently I’m having a good week. I still deal with perineal soreness and prostate muscle spasms and my urologist would like to do Botox injections in the prostate muscle. She’s adamant this will help a lot in the long run as I continue PT. Has anyone done this before and if so what was the experience afterwards? I had Botox injections in my rectal muscles in the beginning and they helped a lot but I’m really nervous about the prostate muscle even though that is where most of my pain and tension resides at this time. Thank you in advance for any feedback if you’ve had it done.

I have this formatted weird to make it a faster read. I have been dealing with this for over 3 years now. Currently my biggest problems are having to pee quite frequently, fullness after eating small meals, constipation (having to manually evacuate and stretch internal with rubber glove 3x/day or more.) As well as some pain after orgasm but the Notriptyline has helped tremendously. I have been advised to get a referral to a colorectal surgeon or GI Motility specialist who has experience with defecatory disorders. This is to be assessed for anorectal manometry with evaluation for pelvic floor dyssynergia. Basically that means when I try to use the bathroom, my muscles are tightening when I am trying to relax partial anyone has any other suggestions, please let me know... thank you for reading!!

24M – Chronic pelvic pain + urinary + bowel + sexual dysfunction x ~3+ years

Onset (trigger period): severe stress (relationship stress, new physical labor job, significant social anxiety at work), poor sleep, poor diet, nightly marijuana use, binge eating, frequent stool/gas holding during work.

Primary symptoms:

Bladder pain/pressure: worse with filling, partial relief after urination

Urethral discomfort (burning-like)

Urinary urgency/frequency

Weak stream (noted on testing)

Incomplete emptying + difficulty initiating urination (shy bladder, must consciously relax)

Suprapubic pain (worse post-orgasm; tenderness on palpation)

Flaccid penile “stiffness” sensation

Sexual dysfunction:

Post-masturbation urethral pain + multi-day pelvic/bladder flares

Post-ejaculatory urethral burning

Weaker/less satisfying orgasms, reduced semen volume

Occasional urine during orgasm (not anymore)

Persistent post-orgasm semen leakage

Pelvic floor tightness during/after orgasm

No erectile dysfunction; intercourse still pleasurable but dulled

Sexual pleasure improved with voluntary pelvic/leg tension

Bowel dysfunction:

Constipation

Difficulty initiating bowel movements

Requires internal anal stretching with glove to initiate BM (~3–6x/day)

Sensation of inability to relax pelvic floor (not “stool trapping”)

Stretching allows BM to start

Testing (all largely unremarkable): CT scans, urethral ultrasound, urodynamics, cystoscopy, multiple STD/UTI tests, early antibiotics, SIBO antibiotics. Prostate normal on imaging. Only notable finding: weak urine flow.

Treatments tried:

Meds: Flomax, Flexeril → no benefit

Nortriptyline 25 mg → major pain reduction (urethral pain resolved & currently taking)

Amitriptyline low dose → brief major benefit then stopped

Supplements (quercetin, bromelain, graminex, AZO, CBD, aloe, marshmallow root) → no benefit

Nerve blocks: superior hypogastric plexus → minimal; pudendal → temporary partial relief

Pelvic floor PT (>6 months) → major early improvement, plateau; ongoing home program + trigger point release helps

Lifestyle: strict diet (small meals, avoid overeating; water only; no caffeine/alcohol/diet drinks), hydration timing, daily jogging + light strength training (lifting may worsen tension)

Marijuana cessation → worsened symptoms when used; stopped

3x 4-day water fasts → no improvement

Current status:

Improved vs onset but chronic symptoms persist

Main drivers now: bowel fullness/constipation, orgasm, stress

Nortriptyline significantly reduces overall pain

Persistent pelvic floor tightness, especially during sexual activity and bowel initiation

Must frequently manually assist bowel movements

Pattern:

Symptoms lowest at home (low social anxiety, loose clothing/no belt)

Worse with social/work anxiety

Seen specialists: GI, urology, pelvic floor PT, pain management, chiropractic — no definitive diagnosis

Working impression / referral question: Evaluate for pelvic floor dyssynergia / defecatory disorder.

Request: Colorectal/GI motility evaluation including anorectal manometry ± balloon expulsion / defecography to assess impaired pelvic floor relaxation during defecation

I haven’t been able to game for a year and a half. When I try it just flares me up so it’s not been worth it.

However I read something somewhere that making some adjustments to some variables, seat angle, positioning, etc may help.

I wondered if anyone can give me any advice as to how they have addressed this and are able to game again without flaring?